Another Member on TDM-1

[Lori R]

Hi gang,
It has been a while since I've posted as I was very busy enjoying the summer off treatment. (yea...Abraxane) Unfortunately, with my scan in mid-July, NED must have also decided to take a vacation. I hope he hasn't gone far.

So, I scrambled to jump through all of the hoops to get into a TDM-1 trial. I was recently accepted into a Phase II trial at the University of Colorado that involves Taxol + TDM-1 and a randomized arm for Perjeta. I was not randomized into the perjta arm. (rats) Oh well....I will take what I can get.

Began treatment yesterday. It was a long, long day as it was both learning the process as well as treatment. My mom flew into Denver for support and spent the entire day with me.

I continue to feel so blessed. I've had so much support as KDR from the site took the time to walk me through her experiences, family, friends. Thank you, thank you.

So far so good on Saturday morning, no major side effects just yet. Only day 2, but remaining optimistic.

So....I will keep you all posted and of course would love to pay it forward if anyone else is considering on of these TDM-1 trials. Sure hope the FDA approves so we don't have to use trials and compassionite use as our only means of gaining access. It took a month for me to get into the trial, which worked pretty well as there is a 21 day wash out period. (talk about anxiety provoking)

More good news to come!!! I am just sure of it!!!

Lori