Another Member on TDM-1
 

Hi gang,
It has been a while since I've posted as I was very busy enjoying the summer off treatment. (yea...Abraxane) Unfortunately, with my scan in mid-July, NED must have also decided to take a vacation. I hope he hasn't gone far.

So, I scrambled to jump through all of the hoops to get into a TDM-1 trial. I was recently accepted into a Phase II trial at the University of Colorado that involves Taxol + TDM-1 and a randomized arm for Perjeta. I was not randomized into the perjta arm. (rats) Oh well....I will take what I can get.

Began treatment yesterday. It was a long, long day as it was both learning the process as well as treatment. My mom flew into Denver for support and spent the entire day with me.

I continue to feel so blessed. I've had so much support as KDR from the site took the time to walk me through her experiences, family, friends. Thank you, thank you.

So far so good on Saturday morning, no major side effects just yet. Only day 2, but remaining optimistic.

So....I will keep you all posted and of course would love to pay it forward if anyone else is considering on of these TDM-1 trials. Sure hope the FDA approves so we don't have to use trials and compassionite use as our only means of gaining access. It took a month for me to get into the trial, which worked pretty well as there is a 21 day wash out period. (talk about anxiety provoking)

More good news to come!!! I am just sure of it!!!

Lori

Re: Another Member on TDM-1
 

Oh Lori, I am so sorry to read that the mets are back but once more you are going to get rid of them with your new combo! i am so happy you are able to try TDM1 and also happy that even with Taxol you are feeling OK. Ned is on his way back...Hugs. Michka

Re: Another Member on TDM-1
 

Lori,
I hope your infusion went well. The first day is very long (with observation periods between drugs).
I love that yet another fighter has gotten the opportunity to get on the T-DM1. I too heard that it should be available for all by December. (Someone here mentioned September). Best of luck to you, friend. Truly believe we are on our way to great things.
Karen

Re: Another Member on TDM-1
 

Your an inspiration for sure! Hope all goes well. Gods blessings to you and I will keep you in my prayers.

Re: Another Member on TDM-1
 

Hi Lori,

I am also on TDM-1. It seems to be working for me, I have been having a few lung issues, but I will know by the end of the week, exactly where I stand.

Good luck
Fern

Re: Another Member on TDM-1
 

Very glad you were able to get into the trial. Stay strong and optimistic (you sound both!) and take care of yourself.
karen z

Re: Another Member on TDM-1
 

My wife Barb started TDM-1 expanded access yesterday with no problems so far. Just talked to her a few minutes ago and shes fine.

Re: Another Member on TDM-1
 

Mike,
That is fantastic news on all fronts. I watched your posts and grew more frustrated on your behalf with each additional "issue". I am so impressed that you knocked down every single obstacle. Also thrilled to hear Barb is feeling well.

Only good news from here on out!!!

You are a good man with a wonderful family. Need I say more??? Lori