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Old 05-18-2011, 11:56 AM   #1
cyalata
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Join Date: Apr 2011
Location: Ohio
Posts: 15
NEED SUPPORT TODAY! More bad news.

I had an mri of my brain yesterday because I had shaking on my left side of my body a few days ago. The MRI shows highly abnormal in brain. The lining of the brain looks like cancer & they want to treat with radiation. I was doing so well until I overworked my body with housework, laundry & grocery shopping 2+ weeks ago & pulled a groin muscle. That's when they did a full skeletal MRI & found 2 tumors one pressing on my spinal cord & one on my lumbar which I've been having radiation to about 5 days now (I get 10 treatments). Now they think I had a seizure & want me to start anti-seizure meds & start radiation to my brain starting tomorrow for 10 days! Has anyone ever had radiation to the brain due to the lining being involved and how did it go & did it work? The weird thing is feel fine! I'm so torn on what to do - 2nd opinion or start this ASAP?
I was diagnosed with BC in 10/08, had a lumpectomy 4/12 lymph nodes + ER/PR positive HER2+ - had TCH & radiation. Got clear body scans, good mammograms for 2 yrs & then got a cough & found it in my lungs, trachea, bones. On xeloda/tykerb for 2 mos & only small amount left in lower left lobe but bones mixed response. Now since the radiation, I'm off chemo & this new development on the lining of my brain. Please help me with some success stories - I need it soooo bad right now! Gail
__________________
10/08 found lump - not even due for mammogram yet. PR/ER/Her2+ Had lumpectomy for 2 lumps 1.1cm & 1.0cm. 4/12 positive lymph nodes. Chemo TCH x 6, radiation. Scans all clear.
10/10 dry cough lung mets, sternum, trachea, bones.
12/10 started T/X
2/11 most gone except for small area in lower lobe of left lung & mixed bone response.
5/11 pulled muscle in groin, had MRI of skeleton, found 2 tumors one pressing on spinal cord & 1 on lumbar.
Started radiation immediately to shrink. Getting first shot Monday for bones (Xgeva sp?) starting back on Hercepin Friday & new plan of attach.
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