NEED SUPPORT TODAY! More bad news.
 

I had an mri of my brain yesterday because I had shaking on my left side of my body a few days ago. The MRI shows highly abnormal in brain. The lining of the brain looks like cancer & they want to treat with radiation. I was doing so well until I overworked my body with housework, laundry & grocery shopping 2+ weeks ago & pulled a groin muscle. That's when they did a full skeletal MRI & found 2 tumors one pressing on my spinal cord & one on my lumbar which I've been having radiation to about 5 days now (I get 10 treatments). Now they think I had a seizure & want me to start anti-seizure meds & start radiation to my brain starting tomorrow for 10 days! Has anyone ever had radiation to the brain due to the lining being involved and how did it go & did it work? The weird thing is feel fine! I'm so torn on what to do - 2nd opinion or start this ASAP?
I was diagnosed with BC in 10/08, had a lumpectomy 4/12 lymph nodes + ER/PR positive HER2+ - had TCH & radiation. Got clear body scans, good mammograms for 2 yrs & then got a cough & found it in my lungs, trachea, bones. On xeloda/tykerb for 2 mos & only small amount left in lower left lobe but bones mixed response. Now since the radiation, I'm off chemo & this new development on the lining of my brain. Please help me with some success stories - I need it soooo bad right now! Gail

Re: NEED SUPPORT TODAY! More bad news.
 

I put leptomeningeal metastases into the search function above and got the following (including several of my previous posts): and be sure to read the reports from Courtney who is currently being treated, successfully so far, with intrathecal herceptin , although for brain mets rather than leptomeningeal mets





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Showing results 1 to 25 of 29
Search took 0.05 seconds. Search: Keyword(s): leptomeningeal, metastases
Thread / Thread Starter Last Post Replies Views Forum

intrathecal herceptin for leptomeningeal her2+ mets--clinical trials begin in France
Lani
05-05-2011 03:54 PM
by Lani
0 42 her2group

Started Intrathecal Herceptin Today ( 1 2 3)
CourtneyL
05-05-2011 03:53 PM
by Lani
46 1,119 her2group

intrathecal herceptin for leptomeningeal carcinomatosis (too many mets to count) --
Lani
03-30-2011 01:52 PM
by SilentBob
12 426 her2group

Heceptin injected thru blood brain barrier
1rarebird
03-11-2011 12:21 AM
by Lani
4 178 her2group

UCSF Advocacy and Scientific Retreat
bejuce
01-11-2011 02:05 PM
by Joan M
12 345 her2group

Taxol Doesn't Treat Common Breast Cancer
dee
12-17-2010 08:22 AM
by Hopeful
4 619 Articles of Interest

Antimitotic chemos promote adhesion in detached and circulating tumor cells
Rich66
09-10-2010 05:53 PM
by Rich66
7 1,579 Articles of Interest

Brain mets
Rich66
09-03-2010 08:56 PM
by Solarhersteller
13 3,249 Articles of Interest

possible progress in treatment development for leptomeningeal breast cancer metastase
Lani
01-02-2010 10:58 AM
by Lani
0 179 her2group

Neoplastic meningitis (spinnal mets)
Rich66
12-07-2009 11:22 AM
by Rich66
0 1,725 Articles of Interest

EVERYTHING you need to know about her2+ brain mets
Lani
09-23-2009 08:10 AM
by Lani
0 176 her2group

Update: Spinal Fluid me ( 1 2)
pattyz
08-27-2009 02:17 PM
by hannah
21 592 her2group

Interesting brain mets digest/newsletter
hutchibk
07-04-2009 12:26 PM
by pattyz
5 195 her2group

~Too Many Brain Mets To Count~Mighty Oak's Saga Continues... ( 1 2 3 ... Last Page)
Believe51
06-24-2009 01:13 AM
by Believe51
91 1,794 her2group

Believe 51, Christmas is coming early this year
Lani
06-16-2009 08:03 AM
by Lani
3 196 her2group

her2+ breast cancer associated with higher risk of brain mets--but better survival
Lani
02-28-2008 06:24 AM
by Lani
0 159 her2group

Her2 and Inflammatory BC trial
Soccermom
12-07-2007 01:35 PM
by Soccermom
0 242 Clinical Trials

latest on breast cancer CNS mets, her2+ in particular
Lani
11-03-2007 01:10 AM
by Lani
0 193 her2group

hot off the press MDAnderson review of 10 yrs' experience w bc brain mets
Lani
10-28-2007 07:06 PM
by fullofbeans
3 358 her2group

Is Tykerb better than Herceptin?
gdpawel
08-23-2007 05:45 AM
by doh2pa
5 881 her2group

for those with brain mets..don't know why it took so long for them to notice!
Lani
07-07-2007 10:51 AM
by Lani
0 199 her2group

ASCO abstract: most important to STAY on herceptin once have brain mets!!!
Lani
06-12-2007 01:32 PM
by Andrea Barnett Budin
10 457 her2group

Hi, I am back....question re:herceptin alone.
Robyn
09-11-2006 04:49 AM
by Shell
9 450 her2group

Be aware ; carcinomatous meningitis
3sweeties
05-19-2006 06:13 AM
by 3sweeties
0 347 her2group

Herceptin is now being tried intrathecally (injected into the brain via the CSF)
Lani
04-07-2006 02:41 AM
by R.B.
2 292 her2group





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Here we go again! ( 1 2)
Lisa
01-07-2006 05:34 PM
by Unregistered
31 1,413 her2group

for those with CNS mets--newly published article
Lani
12-15-2005 10:59 PM
by Lani
0 170 her2group

trial for Lapatinib
*_celina_*
06-17-2005 08:00 PM
by al from canada
6 375 her2group

No Link Between Herceptin and Brain Mets
Joe
10-13-2004 10:51 AM
by Joe
1 82 her2group
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Re: NEED SUPPORT TODAY! More bad news.
 

Oh Gail-

I am so very sorry for your news. I do not have any information but there are so many smart women here. Someone will have input. And there will be success stories that others will share.

Stay strong and feel the support coming your way.

Maureen

Re: NEED SUPPORT TODAY! More bad news.
 

Gail,
I just want you to know that I am rooting for you and pray that you will beat this new challenge. The post today from CourtneyL is very encouraging and may be the treatment for you.

Love and Hugs,
Kris....

Re: NEED SUPPORT TODAY! More bad news.
 

Hi Gail,
I wish I had some answers, but you surely have my good thoughts and prayers. One of our heroes will communicate soon and give you some help for what you need. Lots of love and belief, ma

Re: NEED SUPPORT TODAY! More bad news.
 

Sending god wishes Gail!!! xx

Re: NEED SUPPORT TODAY! More bad news.
 

Gail,
I don't have experience with this...but many here do and I know they will chime in to help you deal with this. Meantime, I will keep you in my thoughts and hope you feel the hug,
Karen

Re: NEED SUPPORT TODAY! More bad news.
 

Hey, I want to bump your bad news up, so that others can lend some support. I hope you have had time to think this through and get more information from your doctor. I also hope that you are not in the Tornado striking zone. Thinking of you and sending my support.

All the best,