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Second opinion
Thank you to everyone for their input. I have scheduled an appointment with a very knowledgeable oncologist at the University of Colorado cancer clinic right after I get back from visiting the new baby.
I also have a stress test and an echo scheduled for mid-July. I have continued to walk a minimum of 45 minutes everyday and do yoga twice a week. Before recurrence I worked out at the gym 3-4 times a week and was riding and running 15-20 miles a week, so I think my heart should be back to normal soon.
Anyway, I just feel very uncomfortable discontinuing Herceptin at this time. Maybe I am just paranoid, but I have not seen anything to indicate that I should stop right now.
My husband and I went to a workshop "Couples Facing Cancer" yesterday and we both found it really helpful. If any of you have a chance to attend a similar workshop, I highly recommend it.
Will keep you posted as to what the other onc says.
Best regards to all,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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