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Old 10-24-2009, 06:06 AM   #1
Midwest Alice
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Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
Herceptin NED IV discussion and poll on portocol

Hi Guys,
I meant protocol!

I’m doing a little study on us guys and gals who have been put on Herception only (at some point ) when NED, for more that a year.
My question is when Herceptin treatment was made indefinite:
Were you IV at first dx, became NED and stayed on Herceptin indefinitely?
Were you I-III, had a reoccurrence and became a IV, successful treatment to NED then put on Herceptin indefinitely?

I value this board and our knowledge and thank God for this place in space we have.
I have an appt, and have to run.. I hope there is some kind of logic to what I just posted. I hope to be on later today.

Love and hugs to all,
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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