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Update on me and continued frustration.
I'm back and my doctor will not schedule a chemo treatment until he hears what Chicago said - so now I am working on that.....I continue to be very frustrated as time is important. So, many calls later and sitting and waiting for the phone to ring, here I am. I would have settled for a "tentative" appointment time/day based on them getting info.
Needless to say I wish I lived where there are much better doctors etc.
Also, just in case someone might like this type of activity or already has done this. If anyone out there is in the mood for research or knows anything about where they are doing a really great job of Radiofrequency Ablation I am still very interested in pursuing this as a possible "back up" treatment and very willing to go "out on the edge" to get it if necessary after reading the article about it. I would fly/stay anywhere.
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Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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