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Flori - first let me say you are SO beautiful! And feeling healthy is a good thing - and not only because it makes you able to say you're not done yet!
And, it gives you time to get those 2nd and 3rd opinions. I think Steph has a good idea with getting a new biopsy, but I would add to that, you might get it assayed to find which chemos might be more effective. There's a lot of alphabet soup out there, and though I know YOU'D probably rather have chowder or a nice lobster bisque, it's good to know you could also give those tumors a good taste of T/C/H, T/A, N/H, and the rest of the alphabet. Something really nasty (for them!)
I know several folks who have had good success with Navelbine/Herceptin for lung mets, and I know a woman who is on Tarceva (Erlotinib?) + Avastin for years with lung mets. That may be on a clinical trial, but you could get it off label. There are still options out there.
My prayer for you is that you and your doctors are given wisdom to make creative and correct choices.
BTW, we're not finished with YOU yet.
MUCH MUCH love
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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