From Flori to God - BTW I'M NOT DONE!
 

I did not have good news today. My pet scan showed further progression so as of today I am off chemo until I figure out what to do next. Can't say much else right now. Have to gather my paperwork, book second and third opinions, and find someone with something to buy me more LIFE-time. Honestly, I feel like the healthiest sick person. Sigh.
--Flori

Delay Is Not Denial. Hold That Thought!
 

Flori, I think that's your Inner Voice telling you -- you are not done. You are going to find the magic bullet with YOUR NAME on it and survive and thrive in true Flori style, w/humor and laughter and grit and a growl. KNOW that that is so! KNOWing it means you OWN it. So go and claim it. It is yours. The future is yours, Floria. I LOVE YOU. And I am sticking my your side, no matter what. You can't get rid of me. I'm a big Flori fan after all...
Andi

You Are Up Late:)
 

Thanks for the speedy reply - I am still numb from this news...changed my picture - decided I don't give a flying "Flori" if people find me online. I would welcome a crazy person brave enough to harass ME right now:) Andi - try and get some rest...xoxo
PS - you are a gem of an online friend!
Love, Flori

Alright, it's time for us to get on the train to solutionville!

Where are the mets showing up? Lungs? And when you say sternum, is it in the lymph nodes in the sternum area or in the sternum bone?

When I had lung and media stinal lymph node mets, we knocked them out with Taxol/Carbo/Herceptin. Have you already had too much Carbo?

Dear Flori -
No - you would NOT be floored with this news. You would just get mad and then get busy. Game on.

I am wondering if you can get a biopsy of one of those stubborn tumors so that a new path report can be done. Maybe with some new information a better match with one of the other new treatments can be tried.

Me too - know what it is like to be a "feeling healthy sick person." Very strange and makes the news seem like it is for someone else.

Ooh La La, You Dressed To Annihilate Anything That Gets In Your Way!
 

One last word, Flori and then I am going to bed. This is ridiculous! Just wanted to say not only to you feel healthy for a sick person (been there too) -- and you look ravishing, darling! Positively deliciously damn fabulous! How's the cuteness beside you? Lucky guy! Embrace each day, and that hot guy too...

Andi

And Julie2's post today shows that she has had great response with 3 months Navalbine/Herceptin for lung and media stinal nodes... I think you still have a long list of options to turn to! We WILL figure this out Flying Flori!! Get some sleep and let us carry some of the weight for you for a few days. Take a xanax and let yourself refill your energy reserves, enjoy the holidays, and then lets go kick some booty...

Flori,

Just wanted to say that my prayers are with you, and hang in there. Your doc will find the magic combination. You are absolutely beautiful and look just wonderful- and your personality and attitude match.

Many good thoughts sent for you today.

Love,
Kelly

Get mad Flori and dig deep down and find you fight! Fight you must. From your post you don't sound like your ready to give in. I decided months ago to fight this beast to the very end as I am sure you will. Your right you look healthy and vibrant. Great picture. I will be praying double time that your onc and you find the right combo and to get you to NED! Sending you lots of hugs and prayers.

Flori
A friend of mine has had very good results with Navelbine and Herceptin for extremely stubborn mets to the nodes and skin.....let your body relax and get ready to fight back once again.....your spirit and smile says it all...you WILL come out on top! We are here for you!

Wish.. I can said some ideas but the only thing that I know in fact is that I 'm 100% sure that you will find something to beat this beast ...just take the obligatory brake and said "bring it on " just try to make the right choice like it you being doing

the news
 

Hi Flori
I'm sorry you didn't get the news you were hoping for. I know you will gather the troops together and go after this with all you've got. I can't imagine cancer or anyone "messing" with you.

I love your new picture - you look so vibrant and healthy, not to mention the handsome guy beside you.........you go girl..........cancer isn't going to be able to handle the wrath of Flori :)

You are looking great in your photo. AndiBB has said it all.

I checked your post headings and diet did not seem to figure. I posted this link a while back. If you have done the diet thing, and living in LA you probably have, feel free to rant at me. Fats and particularly the omega threes and sixes really are fundamental to body function. There is also suggestion that some may have synergies with treatments. Maybe it could tip the balance. Food for thought and something to discuss with your onc. if of interest.

http://www.her2support.org/vbulletin...ight=provoking

These relate to it.

http://her2support.org/vbulletin/sho...ght=greek+diet

http://her2support.org/vbulletin/sho...&highlight=cox

no, you're not done
 

I am P.O.ed for you Flori! But use that to find the new strategy. I'm thrilled you are looking into other opinions and I also think there are options and you are in a good location for trials and such. I also think a new biopsy would be a good idea. Test the heck out of those cells so you can get the treatment right.

You do lool great in that photo, as always.

Sending fighting vibes your way!

Flori,

I'm so sorry to hear that your chemo is not working. I have lung mets and have been on Herceptin/Taxol/Carboplatin since July and my last scan showed some improvement. Also, I've heard very good reports on Navelbine/Herceptin. Don't abandon ship -- there are many combos out there that you can try.

Flori,
Beautiful new photo, love it!
Steph has hit on the nail head. Get those cells checked for your next treatment attack. Your strong fighting attitude, along with your new treatment and all our prayers....will stop that progression in it's tracks.

Blessings,
Jean

Hi Flori,

I wish you all the best and sending lot of positive energy. I answered your question regarding the Navelbine side effects please see my clear scans thread.

Julie

Retreat and regroup. I will keep you in my prayers. I don't know if you saw my post on Ixempra or not. I have no idea if it would help but they do mention for stage four that is not responding to other meds.

Leslie

Flori -

Sorry to hear this news, but as others have said there are lots of other chemo combos to try ... You will fight this beast like the WARRIOR you are Flori...

I am sending all the positive vibes I can your way.

all the best
caya

Flying Flori
 

Thoughts of you filter through my mind from time to time along with the advice and posts that fill our days. This post made me sad, but only for a moment. You are a strong, beautiful, determined fighter who in turn will pick up the pieces of this part of your journey and trudge forward with conviction. I am so sorry you had to hear the news and I know how hard your fight has been for you thus far.

I have mentioned to you before that you are one of my heros. Of course you did not get on my list for nothing. At my highest regards you are Darling!! Flori has forever showed my husband and myself how to fight with your soul. You have always enlightened me, lifted my spirits, provided me with the love, honor and support that I so desperately need at times. I can only hope that loving you back and offering my friendship, prayers and positive energy can supply you with atleast some of the comfort you give to me.

So go pick up those pieces Love and continue to be the inspiring Angel Warrior that I know and love. Keep us posted about this new adventure in your journey. And remember, as I too must, that there are other magic bullets out there....we just need to find them. So I toast to you Flori, My Mighty Oak and all others who are searching for the magic recipe to success. May the combination we are looking for recognize it is right for our cancer and beat the living hell out of those ugly, nasty, bad cancer cells!! And may we get the time we are so yearning for. Here's to life!! And here's looking at you Kid!! Much Love and Energy>>Believe51