How to get in on trails or off label use of Tykerb?
Want opinions on this please.
I know that the size of my tumor and the number of involved lymph nodes puts me at "extremely high risk" of recurrance. (to quote my last Onc) I feel that merrits a higher rate of vigilence. Therefore I started looking for Tykerb trial for post Herceptin stage 3 cancer. The person at GSK told me to get a 2nd opinion from the Onc that was doing the clinical trials here locally and I might be first in line to get in on the trials for early stagers when they start. Does this make sence to you guys? I hate to sound so desperate - chasing an Oncologist who will treat me more aggressivly but I come by this feeling from my readings here! It seems many on this site are much more inclined to treated at a higher level that the standard protocols for BC. My appointment is this Friday...
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Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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