How to get in on trails or off label use of Tykerb?
 

I have very similar situation to yours; Just finished my year of herceptin (actually a treatment short due to
large decrease in my EF) I asked my onc about staying on longer anyway and he said no way....I have information from a friend of a friend in Boston (I live in Florida) who is in a trial for tykerb due to cardiotoxicity from herceptin) but I am not sure whether or not she has mets...my oncologist said she must be stage four because he knows of no trials for tykerb otherwise....I have done some limited searching on the net and have only come up with trials for tykerb for met. breast cancer....I too feel the urgency to continue with some form of maintenance because I know of other women with similar protocols and staging who have become metastatic after just 3 months off of the herceptin....

Hold Tight...Tykerb should be FDA approved by mid-March at the latest. It is then up to your onc to determine if you will benefit.


Regards
Joe

Thanks, Joe....I hope it gets approved ASAP...however, I still worry that they will only pay for it in a metastatic situation, which I am desperately trying to avoid in the first place !!!

I just saw a post about tykerb with stage 3b... i think it was on the breastcancertrials.com website. I also noticed some for early stagers.

Kim and Juli

I thought the new trials for Tykerb are for women that have not been on Herceptin? I wonder if they told you that when you called them

I read that early stagers who have not had herceptin were considered on the trial.

As Joe said, hold on it is coming in March.

Jean

So far every trial available is for people who have not taken Herceptin according to GSK when I spoke to them. That is why they told me to go see this Onc who does trials - so when one comes up I might have a foot in the door already... it was just a suggestion not a guarentee.