bone mets "too many spots to list"

[Pam P]

I went for my 1st treatment today of taxol/carbo/herceptin. So far this afternoon I feel fine...

It wasn't my day to see the onc., but I ran into him. Last week when we reviewed my pet/ct scan results it said moderate progression in the bones, prominence and intensity and new areas. Then is just gave one specific example of L1 going from a previous SUV of 4.9 to 13. I told my onc. I wasn't happy with the report and that I wanted a more detailed one listing all the spots and SUV levels. My onc. told me today he had talked to the radiologist and 'there are too many spots to list them all"!!! In Dec/Jan there were several spots in vertebrae - maybe 5-6 and maybe 6 ribs. Now I guess it's in the hips, pelvis, not sure where else. The rad is going to send an addendum to the report listing a half dozen of the new/major sites so I can compare those with a future scan to compare if this new treatment is working.

I can't believe this has progressed so much in so little time while I was on taxol/avastin, then gemzar/herceptin for 4 months. Scary. I really need this tch to kick butt now! I'm also looking often and waiting for a t-dm1 trial to open that I fit the criteria for and is close to home. Hopefully there will be one if/when I need to change from TCH.

Thanks for listening to another update!