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Old 03-12-2007, 10:14 AM   #1
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
anyone ever have this

So I've been on weekly Navelbine/Herceptin for 6 months and have found it to be an easy combination. All in all I still find it easy. But since treatment last thursday I have been really tired and muscle crampy and I feel like my whole right side is heavier and painful (nothing I can't tolerate). I guess my question is can you just be going along fine on a treatment and then out of nowhere have different side effects or more intense ones ? Or am I starting to have complete organ failure and its all over?

I just had all those scans so I feel like we know what is what and where. The only time I've had liver pain from tumors was when one was really big over 4 years ago and when one that was close to the edge began growing about 2 years ago.

Also, can benign scarring show up hot on a PET/CT? And is it possible to have lung mets that never change no matter what treatments you are doing or is it possible that they are something else?

Just things I'm worried and curious about. Thank you.
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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