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Old 07-20-2007, 11:34 AM   #1
Ruth
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Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 357
Message of love and peace?

I wanted to write all of you something that I just almost can't get my mind around. Several months ago my dad passed away very unexpectedly. We were very close and in fact my parents built their dream house right next door and moved in a little over a year ago. My dad was a retired Veterinarian and his favorite animal was birds. We always had lots of dogs and cats but he enjoyed birds the most and was very upset when our kitties would do bad things to birds. Well, about a month ago a white dove showed up at both of our houses. He would land on my roof and my parents. Sit around, turn his head to me when I spoke to him and basically lived here. My husband and I fed him regular dove food and I could actually get really close to him. So close that I saw that he had tags on his claws. My family just got back from vacation yesterday and my neighbor told me that black crows attacked him (I named him Mr. Darcy) while we were gone. They will do that if another bird is weakened. The UGA Vet school has him and he is going to be OK. His real name is Snowflake and he is lost from California. I live in GA. They can't believe that he made it all the way across the country from CA! I want to believe that my daddy sent him to us....I don't know. He is so beautiful and I was the only one who could get inches from him. He followed me around the yard. I have 3 kitties too (inside only) but I am definitely going to see if I can keep him if the owners in CA don't want him back or pay for the Vet bills. My Dad also worked for the Vet school and taught some pathology classes. What do you all think? Have I lost my mind?
Hugs ~ Ruth
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[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 07-20-2007, 11:51 AM   #2
hutchibk
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You have NOT lost your mind. Messages of love are sent from our deceased loved ones all the time, we just have to be open to seeing them!
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-20-2007, 12:18 PM   #3
Patb
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Its a wonderful story. Keep it in your heart
patb
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patb

Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 07-20-2007, 12:31 PM   #4
Margerie
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Beautiful story. I hope you can keep him! A different version of pennies from heaven.
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Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 07-20-2007, 01:33 PM   #5
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink RUTH -- how marvelous that you are OPEN

Brenda took the words right out of my mouth. Precisely. I echo her comments. That dove was a loving message to you, to be at peace, knowing your dad is feeling heavenly and will love you for eternity. It's a sign, a symbol. And you got it! Good for you.

Living OPEN to Life's Messages is wondrous. I have learned to do this since dx and learning about Spirituality. It's Truths speak to my heart and resonate with magnificent symphonic clarity.

Sending you and all my Soul Sisters loving energy... ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 07-20-2007, 01:42 PM   #6
Audrey
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Ruth, I love your story about the dove--before my diagnosis I might have been skeptical, but now my eyes are more open to such messages/signs all around us. I hope you get to keep the dove.
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Audrey

diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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Old 07-20-2007, 02:20 PM   #7
dhealey
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Location: moved to Lancaster, Pa in June, 2010
Posts: 576
Ruth, That was such an inspiring story! You have not lost your mind. I truly believe the bird was sent by your dear father. You must keep the dove. I lost my mother to breast cancer in 1997 and since then have had many "pennies" from heaven. She has been my guiding force since my diagnosis in Oct. My mastectomy was on her birthday of all things and I truley believe she was right there with me keeping me calm.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 07-30-2007, 11:35 AM   #8
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 3,000
Talking Maybe not a bird story but.....

My grandfathers favorite song to sing to my mom & aunts was "You Are My Sunshine"...(My Only Sunshine..You Make Me Happy When Skies Are Blue...). Very very old song that is rarely heard. He would sing that song all the time and still does even though he has been passed away since 1968. Whenever we need my Grandpa he comes to let us know everything is alright. We hear the song in the wierdest situations and at the strangest times. My brother and my high school & college graduations, my wedding day, my mom's birthday (Halloween=only day of the year I can call her a witch and get away with it=LOL), whenever I am lonely or scared or sad or upset he comes. The week of my husband's diagnosis Grandpa came to visit, hearing that song let me know that he was comforting me, that he was somehow sending me the sign that he was here with us, he understood and that somehow everything would be okay. So far Grandpa has only come when I ask for a sign if the outcome is good. Maybe my husband will get some time out of this; 'cause Grandpa said and maybe he has connections...LOL


Now whenever I hear it I always say, "Hello My Dearest Grandpa, thank you for comforting me, for sending the signs I so desperately need!!" This year for my birthday I did not want a thing, I mean what more could I ask for since I had my husband still here with me?? All I said was "To make this day complete, I need my grandpa to visit". An hour later....he did!!

The day I took my husband home from the hospital after diagnosis I heard a different song that was a sign I asked for from God. This is a song I relate directly to my husband's illness. I will not get into that long story 'cause you know I can get-a-talking..whew, but that song is heard whenever I need a sign from God concerning my husband's illness. (imagine that, he had not been to the hospital since he was a wee kid!!)

These two songs have special meanings for me and are heard whenever I need a sign or some inspiration, sometimes I do not even know that I need the sign. What comfort I gather when I hear them, they represent to me that God is at work!! He has his messengers and boy are they busy!!!

Coincidence??? I THINK NOT!!

I too love this post and will save the other song for another time.

Waiting For A Miracle...and commanding one soon!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 07-30-2007, 11:52 AM   #9
hutchibk
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Posts: 3,519
Some messages are not as beautiful as songs and doves, but very appreciated nonetheless! I lost my brother, sister-in-law, niece and nephew in a private plane crash in 2001. The NTSB and FAA could not definitively determine an official cause, but due to info that we put together ourselves and in talking to ground witnesses, our family and friends surmised that it was an issue of faulty fuel lines/vapor lock that caused fuel starvation to the engine. Right around the time that the NTSB report came out with no real cause, all three of our cars developed fuel line leaks within 3 days of each other. All well kept cars with no previous fuel problems, no explaination for this to happen. When the third one started leaking, my boyfriend pondered "what the F*%$ is going on?" Suddenly it hit me, my brother was doing this to send us a message that we were on the right track as to the cause of the crash... it was a fuel problem, just as we thought. It was his way of telling us we were right! I looked up to the clouds and told him that I got it, thanks, and if he could find a less expensive way of sending us messages it would really be appreciated!! LOL.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-30-2007, 12:03 PM   #10
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 3,000
Wink I got chills Woman!!

Wow Brenda, I just got the chills. What a wonderful way for him to give you all some closure. I think he was telling you just that...that you are all on the right track.

Waiting For A Miracle..and commanding one soon!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 07-30-2007, 12:17 PM   #11
StillHere
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Location: Greendale, WI just outside Milwaukee
Posts: 211
Smile

Loved all the stories, and yes I am more open to everything since dx. Here is mine. My CA27-29 markers have been rising slightly since December (28-37-41-46). My oncol asked if I wanted a PET scan to check if there was any new activity. I said yes. I was so sure that something was going to show up because my lower back and hips ache to the point of waking me up in the middle of the night. Well I had PET scan last Wed. I put my mothers ring on Fri morning because I did not want to hear the results alone. It is an opal ring that my husband I gave her for babysitting the kids when the were small (They are now 27 & 29). I wore it the first year after her death whenever I missed her (especially holidays). I seldom ware it now, but really felt a strong need to put it on last Fri. The oncol office did not call until 4:30 while I was at work. I rubbed the ring and got ready for the worst. To my supprise, nothing except possible inflamation at previous surgical site showed up. It may have just been too soon for the PET scan to show anything, but I am thrilled just the same. I did have to spray Windex on my finger to get the ring off the next day. (Windex, not soap or lotion works great - tip from jewler). I guess this is also a sign that I should start losing some weight.
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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