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07-20-2007, 11:34 AM
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#1
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 357
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Message of love and peace?
I wanted to write all of you something that I just almost can't get my mind around. Several months ago my dad passed away very unexpectedly. We were very close and in fact my parents built their dream house right next door and moved in a little over a year ago. My dad was a retired Veterinarian and his favorite animal was birds. We always had lots of dogs and cats but he enjoyed birds the most and was very upset when our kitties would do bad things to birds. Well, about a month ago a white dove showed up at both of our houses. He would land on my roof and my parents. Sit around, turn his head to me when I spoke to him and basically lived here. My husband and I fed him regular dove food and I could actually get really close to him. So close that I saw that he had tags on his claws. My family just got back from vacation yesterday and my neighbor told me that black crows attacked him (I named him Mr. Darcy) while we were gone. They will do that if another bird is weakened. The UGA Vet school has him and he is going to be OK. His real name is Snowflake and he is lost from California. I live in GA. They can't believe that he made it all the way across the country from CA! I want to believe that my daddy sent him to us....I don't know. He is so beautiful and I was the only one who could get inches from him. He followed me around the yard. I have 3 kitties too (inside only) but I am definitely going to see if I can keep him if the owners in CA don't want him back or pay for the Vet bills. My Dad also worked for the Vet school and taught some pathology classes. What do you all think? Have I lost my mind?
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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07-20-2007, 11:51 AM
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#2
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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You have NOT lost your mind. Messages of love are sent from our deceased loved ones all the time, we just have to be open to seeing them!
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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07-20-2007, 12:18 PM
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#3
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Its a wonderful story. Keep it in your heart
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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07-20-2007, 12:31 PM
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#4
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Senior Member
Join Date: Aug 2006
Posts: 492
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Beautiful story. I hope you can keep him! A different version of pennies from heaven.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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07-20-2007, 01:33 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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RUTH -- how marvelous that you are OPEN
Brenda took the words right out of my mouth. Precisely. I echo her comments. That dove was a loving message to you, to be at peace, knowing your dad is feeling heavenly and will love you for eternity. It's a sign, a symbol. And you got it! Good for you.
Living OPEN to Life's Messages is wondrous. I have learned to do this since dx and learning about Spirituality. It's Truths speak to my heart and resonate with magnificent symphonic clarity.
Sending you and all my Soul Sisters loving energy... ANDI 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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07-20-2007, 01:42 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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Ruth, I love your story about the dove--before my diagnosis I might have been skeptical, but now my eyes are more open to such messages/signs all around us. I hope you get to keep the dove.
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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07-20-2007, 02:03 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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You have NOT lost your mind! Thank you fo much for sharing your wonderful story!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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07-20-2007, 02:20 PM
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#8
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Ruth, That was such an inspiring story! You have not lost your mind. I truly believe the bird was sent by your dear father. You must keep the dove. I lost my mother to breast cancer in 1997 and since then have had many "pennies" from heaven. She has been my guiding force since my diagnosis in Oct. My mastectomy was on her birthday of all things and I truley believe she was right there with me keeping me calm.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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07-20-2007, 02:37 PM
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#9
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Senior Member
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
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from one birdbrain...
I have a bird story, too. When I had my first recurrence I had a very dark day and was crying and ranting and raging at God - it was summer of 2002. I was loosing my edge, my faith and was so depressed. I asked God for a sign of hope. Later that particular afternoon, I was working in my studio and a bright yellow bird flew into the room, and circled three times and flew away. It was amazing to me that the bird flew in to begin with, and then was able to fly back out without crashing - he was flying so very fast. I always considered that a sign from God. Keep reading...
Fast forward to March of this year. Recently diagnosed stage four, I was beside myself with grief and fear. Again, asking for a sign of hope. And once again, the yellow bird appeared - this time circling the outside of my house. REally, what are the odds? The only birds we get around here are crows, pigeons and local small brown birds. Even the Blue Jays and Robins don't show up much in this particular area. This bright yellow (finch?) bird does not live around Beverly Hills.
I have not seen the bird since but the other day there was a beautiful black feather on my doorstep - it looks just like an elegant feather quill for writing. I took it as a sign I should share my writing with others.
You are not crazy - that's my answer, but consider the source. LOL. I think that dove is a message from your Dad. I hope the people let you keep him, but even if they don't, the "message" was delivered so returning the bird to people who love and miss him would be okay, too.
Flori
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.
3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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07-20-2007, 04:51 PM
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#10
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Definitely not crazy! Our God is an awesome, loving and compassionate God who cares for each one of us. I am not surprised at all that He would show His love and comfort in these ways.
I love hearing stories such as these. It makes my faith stronger and never ceases to amaze me how wonderful our God is.
Thanks for sharing your wonderful stories you two.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-20-2007, 07:50 PM
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#11
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Ruth,
Wow! Definately not crazy and in my mind a God thing.
Keep us informed about the dove.
Love,
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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07-22-2007, 10:15 AM
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#12
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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For Ruth
I also believe this "sign" to be a message. I believe in signs.
My mom passed away in 1997, a year after my diagnosis of breast cancer.
We both enjoyed sitting in my yard and watching the little critters , expecially the cardinals and on rare occasion's, A HUMMINGER. She would get so excited when ever we did spot one. We dont see many down here.
Several years after her death, and each time it seemed to be after I had gone through some type of surgery, I was sitting in my computer room and for no reason I thought of the Hummingbird. Well, later that day, guess what appeared right outside of the window where I was sitting, A HUMMINGBIRD....
This happened several times after and I took it as a sign from my mother, that things were going to be ok. I don't have explanations for things that happen and I can be skeptical of some things, but I choose to think of this one as a message from my mother.
Keep believing, and I hope you get to keep the dove.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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07-22-2007, 01:28 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Lumberton, Mississippi
Posts: 118
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What a wonderful sign from God. You are not crazy. Just read the responses. We must all be crazy then. I had two white doves start showing up in my yard at the beginning of spring. We have seed out for all birds. They are so beautiful to watch and listen too. They sound different from the regular grey doves that are around this area. I think God must have put them on earth as another sign of his love and forgiveness. Thank you for sharing this heart touching story.
Linda
S. Mississippi
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05
"Worry looks around. Sorry looks back. Faith looks up."
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07-22-2007, 01:59 PM
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#14
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Ruth,
You are not crazy! I believe it was your father letting you know that he was there for you and looking after you.
I have moved so many times I've lost track. When I was diagnosed with breast cancer I moved to GA to live with my daughter and her family. When I was going through my drawer one day I found a rosary - just a blue plastic one and on the cross was scrapped "E.McC 3-17-59" I had no idea where it came from as I had never seen it before. I knew the McC was from someone in my family as my name is McCarthy. I called my brother Joe since he is the geanologist in the family and told him about it. Turns out it belonged to my father's sister, Eleanor, who died of ovarian cancer. I have no idea how it came into my hands but feel it's a sign from God. I use the rosary every night to pray for all the women and men on this board who have cancer and also for all of their caregivers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-23-2007, 08:32 AM
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#15
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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great thread
While I'm a junkie for the fabulous information on this site, I think that a thread like this is possibly better! thank you somuch for sharing your stories.
I have an amazing story or two.
When I was first dxed as stage I, of course i was devastated and living in panic. I had my lumpectomy and was waiting to start A/C. My family was here and being so supportive. My mom, dad, sister, brother-in-law and my kids went out to eat and we had to wait and wait for a table (because as we joke in Ft. Collins-no one cooks here). they offered us two tables next to each other and we decided to wait for a table together.
So we were seated at a big table and it had been cleaned up from the last party-all good. I took my seat and noticed that at my place setting there was an origami crane made out of someone's deposit slip. The next day my sister bought me a book on origami and we looked up the crane which symbolizes long life and prosperity. And that day I got my path report which said clean margins, no node, no vascular invovlment. Which was what we were so hoping for. I still have it and have never opened it up to see who's it was-mostly cause I know I could never refold it.
Of course, the game changed two years later when I was redxed and given months to live. Over 5 years ago!
My other story is from this summer. I have started a sketch book of things I want to manifest and positive images for this ridiculous fight we all have. I have always loved dragonflies and turtles as their 'medicine' is long life. Dragonflies have survived since prehistory and turtles live an amazingly long time. And they are just cool!
So in the long car ride to our houseboat trip in texas i sketched dragonflies on one page and turtles on a couple pages. Sooo we set up our houseboat in this cove and over the next couple days we saw dragonflies of every color, shape size EVERYWHERE. they would land on me and just hang out. AND there were turtles in the water constantly. On both sides of the boat at any given time I could see a couple of turtles surfacing and staring, going under and coming back up and by the end of our houseboat time they had moved very close to where we would swim. We named our cove "Tortuga Cove". On our last morning I just sat in the water and talked to the turtles and let the dragonflies hover every where and it is a visual that I hold dear every day.
Life is amazing!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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07-23-2007, 09:32 AM
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#16
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I love this thread too..................
I love this thread too..........I am so encouraged by each and every story and KNOW these are messages from God to us. It makes me feel so "warm and fuzzy" when I hear them. I feel kind of left out actually....................wish I had a "story" to share. Oh well, the amazing love and peace I feel from my Heavenly Father will have to be my story for now....................Not a bad story I guess but maybe some day my "angel" will come and visit me too. Hope so - hope so - hope so!!!
Love to all,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-23-2007, 09:55 AM
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#17
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Ruth
I also believe that the dove, a sign and symbol of peace, was sent to you for a special reason.....our hearts are touched many times during our lives by special moments....we must be open to them to fully understand and enjoy.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-25-2007, 05:57 PM
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#18
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Senior Member
Join Date: Mar 2006
Posts: 78
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What a lasting legacy your dad left you--his love of animals. Thank you for sharing your beautiful bird story. As others before mentioned, the dove is a symbol of peace and promise. Your dad is watching over you.
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
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07-30-2007, 11:35 AM
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#19
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Maybe not a bird story but.....
My grandfathers favorite song to sing to my mom & aunts was "You Are My Sunshine"...(My Only Sunshine..You Make Me Happy When Skies Are Blue...). Very very old song that is rarely heard. He would sing that song all the time and still does even though he has been passed away since 1968. Whenever we need my Grandpa he comes to let us know everything is alright. We hear the song in the wierdest situations and at the strangest times. My brother and my high school & college graduations, my wedding day, my mom's birthday (Halloween=only day of the year I can call her a witch and get away with it=LOL), whenever I am lonely or scared or sad or upset he comes. The week of my husband's diagnosis Grandpa came to visit, hearing that song let me know that he was comforting me, that he was somehow sending me the sign that he was here with us, he understood and that somehow everything would be okay. So far Grandpa has only come when I ask for a sign if the outcome is good. Maybe my husband will get some time out of this; 'cause Grandpa said and maybe he has connections...LOL
Now whenever I hear it I always say, "Hello My Dearest Grandpa, thank you for comforting me, for sending the signs I so desperately need!!" This year for my birthday I did not want a thing, I mean what more could I ask for since I had my husband still here with me?? All I said was "To make this day complete, I need my grandpa to visit". An hour later....he did!!
The day I took my husband home from the hospital after diagnosis I heard a different song that was a sign I asked for from God. This is a song I relate directly to my husband's illness. I will not get into that long story 'cause you know I can get-a-talking..whew, but that song is heard whenever I need a sign from God concerning my husband's illness. (imagine that, he had not been to the hospital since he was a wee kid!!)
These two songs have special meanings for me and are heard whenever I need a sign or some inspiration, sometimes I do not even know that I need the sign. What comfort I gather when I hear them, they represent to me that God is at work!! He has his messengers and boy are they busy!!!
Coincidence??? I THINK NOT!!
I too love this post and will save the other song for another time.
Waiting For A Miracle...and commanding one soon!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-30-2007, 11:52 AM
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#20
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Some messages are not as beautiful as songs and doves, but very appreciated nonetheless! I lost my brother, sister-in-law, niece and nephew in a private plane crash in 2001. The NTSB and FAA could not definitively determine an official cause, but due to info that we put together ourselves and in talking to ground witnesses, our family and friends surmised that it was an issue of faulty fuel lines/vapor lock that caused fuel starvation to the engine. Right around the time that the NTSB report came out with no real cause, all three of our cars developed fuel line leaks within 3 days of each other. All well kept cars with no previous fuel problems, no explaination for this to happen. When the third one started leaking, my boyfriend pondered "what the F*%$ is going on?" Suddenly it hit me, my brother was doing this to send us a message that we were on the right track as to the cause of the crash... it was a fuel problem, just as we thought. It was his way of telling us we were right! I looked up to the clouds and told him that I got it, thanks, and if he could find a less expensive way of sending us messages it would really be appreciated!! LOL.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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