09-28-2011, 04:03 PM
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#1
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Liver Mets/Medical Record stories - LBBC
Just received this e-mail from LBBC Publications anna@lbbc.org:
LBBC has several opportunities for you to contribute to upcoming publications. If any of these projects are of interest to you, please respond to the author by Monday, October 3, with your name, age, ethnic background, city/state, and the number of years since your diagnosis. Your words can help inspire others.
Liver Mets
If you are living with breast cancer that has spread to the liver and are experiencing symptoms related to your diagnosis, we want to hear from you. If you’re interested in being interviewed for our upcoming national newsletter, send an email to robinwarshaw1@verizon.net. Please include a few sentences about your diagnosis, symptoms, treatment and emotional impact.
Managing Your Medical Records
If you have used various tools to help manage and maintain your medical records, we want to hear from you! The next issue of our national newsletter will educate women on how keeping their own accurate, complete medical records can help them play an active, informed role in their recovery and long-term care while serving as a roll model for loved ones.
If you are interested in sharing your story, email Anna Shaffer at anna@lbbc.org. Let Anna know what information you collected, how you obtained it, how you organized it and what tools you used.
Share Your Story: Changing Life Focus
If being diagnosed with metastatic breast cancer changed your life focus, here's your chance to motivate and inspire others in your own words! We'll give you 675 words to write about your story, which is due on Monday, Oct. 10. To be considered, write to Anna at anna@lbbc.org with your name, age, where you live, the number of years since your diagnosis and a few sentences about why you want to participate in the article.
Art and Music Therapy
Have you used art or music therapy to help you cope with treatment? Tell us how it helped you cope with your emotions during and after your diagnosis. Share with others what type of art or music therapy you engaged in and how you got started. To learn more, contact michael@lbbc.org.
Warmly,
Living Beyond Breast Cancer's Publications Team
Toll-free Survivors’ Helpline: (888) 753-LBBC (5222)
354 West Lancaster Ave, Suite 224
Haverford , PA 19041
(610) 645-4567
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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