HER2 Support Group Forums - View Single Post - Stage I, how do is NED/progression normally monitored?

Laurel · 09-04-2009, 05:09 PM

I am a Stage I gal and I am only scanned if I have an issue pop up or I insist on an annual scan and or MRI. I know that there is a significant amount of radiation with the scans, so reducing exposure is wise, however I wish I had the assurance of a scan to alleviate my anxiety. Presently, I have an aching Lt hip. Naturally, I am concerned it is mets. Interestingly since discontinuing the Tamoxifen my hip is troubling me less. I will not even have any blood work except the standard CBC. I have renal studies and liver studies secondary to the Clondronate trial I am in otherwise I would not have those monitored.

Yes, at times I do feel as though I am flying blind!

09-04-2009, 05:09 PM	#2
Laurel Senior Member Join Date: May 2008 Location: Hershey, PA. Live The Sweet Life! Posts: 2,005	Re: Stage I, how do is NED/progression normally monitored? I am a Stage I gal and I am only scanned if I have an issue pop up or I insist on an annual scan and or MRI. I know that there is a significant amount of radiation with the scans, so reducing exposure is wise, however I wish I had the assurance of a scan to alleviate my anxiety. Presently, I have an aching Lt hip. Naturally, I am concerned it is mets. Interestingly since discontinuing the Tamoxifen my hip is troubling me less. I will not even have any blood work except the standard CBC. I have renal studies and liver studies secondary to the Clondronate trial I am in otherwise I would not have those monitored. Yes, at times I do feel as though I am flying blind! __________________ Smile On! Laurel Dx'd w/multifocal DCIS/IDS 3/08 7mm invasive component Partial mast. 5/08 Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH 0/5 nodes 4 AC, 4 TH finished 9/08 Herceptin every 3 weeks. Finished 7/09 Tamoxifen 10/08. Switched to Femara 8/09 Bilat SPM w/reconstruction 10/08 Clinical Trial w/Clondronate 12/08 Stopped Clondronate--too hard on my gizzard! Switched back to Tamoxifen due to tendon pain from Femara 15 Years NED I think I just might hang around awhile....