Ma,
Thanks for your concerns MA,
Doc said he has read a recent article (which he gave me a copy of) about single agents being just as successful as combined chemo agents. So he suggested using Taxetere alone. We have told my doc that we are planning a trip to Mayo for 2nd opinion which my doctor happily set up for me. Until then, he wants to drop Tykerb & keep me on Xeloda and add Avastin. He ask me if I knew any thing about Avastin and I told him I knew it restricted new blood supply to tumors. He was quit impressed!!! I gave all the credit to this site and to all of its knowledgeable members. He was also impressed to hear that there was such a site for us Her2 neus. My appt (tentative) for Mayo is Jan 8th. They are reviewing my case and may bump up my appointment up sooner. So that is where we are now.
Myself as how I am doing, I am having pain in the bones & liver, not too severe, but taking a pain pill so I can get comfortable to sleep at night. I took my time to cry and now I am back on my feet ready to duke it out with this junk once more (thanks to the support from my warriors here on this site and abroad). Thank you all.
I will be posting a a question about Avastin. I hope those that have been on it can give me some feedback.
Love & hugs,
Michelle
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Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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