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Becky · 06-13-2007, 06:57 PM

The taxol (much like Taxotere) was torturous for me. The brutal leg pains were horrific - like electric jolts! I only started running again about 3 months ago and had to only walk to insure proper foot placement on the ground. I was afraid if I started to run, I would break my ankle as I really didn't know where the hell my foot was until recently. I think I got major nerve damage from the stuff and my nerves have finally regenerated or something.

You are not a complainer. You are just stating a fact. I took Percocet when needed during treatment. My radiation oncologist asked me how I was doing on Taxol during my consultation and I told him. He said he had actually seen women in wheelchairs (temporarily) because of it and it is not imagined or blown out of portion. But this will pass and the tremendous amount of steroids you have to take prior to and during do not help the situation in the least. Make sure you really discuss your side effects with your onc so you get something. I didn't because I didn't get along with my first onc and didn't deal with him unless I had to. This certainly affected my health somewhat.

Hugs to you

06-13-2007, 06:57 PM	#18
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	The taxol (much like Taxotere) was torturous for me. The brutal leg pains were horrific - like electric jolts! I only started running again about 3 months ago and had to only walk to insure proper foot placement on the ground. I was afraid if I started to run, I would break my ankle as I really didn't know where the hell my foot was until recently. I think I got major nerve damage from the stuff and my nerves have finally regenerated or something. You are not a complainer. You are just stating a fact. I took Percocet when needed during treatment. My radiation oncologist asked me how I was doing on Taxol during my consultation and I told him. He said he had actually seen women in wheelchairs (temporarily) because of it and it is not imagined or blown out of portion. But this will pass and the tremendous amount of steroids you have to take prior to and during do not help the situation in the least. Make sure you really discuss your side effects with your onc so you get something. I didn't because I didn't get along with my first onc and didn't deal with him unless I had to. This certainly affected my health somewhat. Hugs to you __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"