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Chelee · 03-20-2007, 09:12 PM

Becky, Thanks for all the great information. Your always so great at explaining things. It sounds like I got most of the information correct other then the fact that NOT all hyperplasia turns into DCIS. Maybe my surgeon said it *can* turn into DCIS and then IDC over time. (Verses that it *does* over time.) I just know I feel a sense of relief that this is over & done with.

My surgeon assured me there was no signs of DCIS...only the hyperplasia...so that was very good news. The only thing left to cause this pain in the axilla *has* to be the port? I've had the port in for 13 months now and I know it sure looks bad on my arm where the cathether tubing runs under the skin. Its all red and has scar tissure built up on it. I do believe I am at the END of my herceptin. But to be honest I've kept my mouth shut since my onc pays NO attention to me or whats going on. If they gave me a few extra herceptin by accident, I sure wasn't going to say a word about it.

I missed three wks of herceptin when I landed in the hospital...so this month probably is the LAST of herceptin. I know my nurse just asked me this last time? (I think they are ON to me.) LOL I'm busted. So if they figure it out for sure...I WILL have my port pulled to see if the port is the problem? Process of elimination. My axilla feels like I *scraped* the *inside* of it really hard on a brick wall. It really hurts. I'll give it a couple weeks to settle down and then see about getting it pulled.

One last thing...I am SMILING after getting this last path report...and even more so after hearing from you...and Lani's great information she took the time to post. Its much apperciated.

Chelee

03-20-2007, 09:12 PM	#11
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Becky, Thanks for all the great information. Your always so great at explaining things. It sounds like I got most of the information correct other then the fact that NOT all hyperplasia turns into DCIS. Maybe my surgeon said it can turn into DCIS and then IDC over time. (Verses that it does over time.) I just know I feel a sense of relief that this is over & done with. My surgeon assured me there was no signs of DCIS...only the hyperplasia...so that was very good news. The only thing left to cause this pain in the axilla has to be the port? I've had the port in for 13 months now and I know it sure looks bad on my arm where the cathether tubing runs under the skin. Its all red and has scar tissure built up on it. I do believe I am at the END of my herceptin. But to be honest I've kept my mouth shut since my onc pays NO attention to me or whats going on. If they gave me a few extra herceptin by accident, I sure wasn't going to say a word about it. I missed three wks of herceptin when I landed in the hospital...so this month probably is the LAST of herceptin. I know my nurse just asked me this last time? (I think they are ON to me.) LOL I'm busted. So if they figure it out for sure...I WILL have my port pulled to see if the port is the problem? Process of elimination. My axilla feels like I scraped the inside of it really hard on a brick wall. It really hurts. I'll give it a couple weeks to settle down and then see about getting it pulled. One last thing...I am SMILING after getting this last path report...and even more so after hearing from you...and Lani's great information she took the time to post. Its much apperciated. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.