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Search took 0.27 seconds; generated 72 minute(s) ago. Search: Posts Made By: tousled1
Forum: her2group 03-13-2008, 04:32 AM
Replies: 10
Views: 2,288
Posted By tousled1
This is the test that has successsfully diagnosed...

This is the test that has successsfully diagnosed my progression - not once but twice. Tumor marker tests have never been reliable for me but my oncologist and I have found that the HER2 test is...
Forum: her2group 03-12-2008, 07:05 AM
Replies: 14
Views: 1,898
Posted By tousled1
Tried to post

I have typed message 3 timesnow to post and everytime I go o post it it just disappeasrs. I am going to take that as an omen that I am not to post right no. Just leet me say thank you to Karla for...
Forum: her2group 03-06-2008, 03:33 PM
Replies: 15
Views: 2,429
Posted By tousled1
Well, what can I say about day two???? Let me...

Well, what can I say about day two???? Let me just say I must have a very sensitive digestive system! Thank God for Immodium!!!!! and the BRAT diet!
Forum: her2group 03-04-2008, 05:36 PM
Replies: 15
Views: 2,429
Posted By tousled1
Smile Got my Tykerb/Xeloda

Just wanted to let you know that I am no officially on Tykerb/Xeloda (as of this morning.) I went to my onclogist's office yesterday and picked up my prescriptions. I'm fortuante that I have good...
Forum: Herceptin / Tykerb 03-04-2008, 05:27 PM
Replies: 6
Views: 3,146
Posted By tousled1
I saw my oncologist yesterday and started my...

I saw my oncologist yesterday and started my Tykerb/Xeloda today. I did ask her about testing me for the enzyme. Her reply was that she has only ever had to test one person. It seems that almost...
Forum: her2group 03-04-2008, 05:06 PM
Replies: 27
Views: 3,718
Posted By tousled1
Karen, I know how deasted you must be...

Karen,

I know how deasted you must be feeling right now. It is never easy to hear that a treatment plan is not working. But look on the positive side the lung and pancreas did not progress. I...
Forum: her2group 03-04-2008, 05:00 PM
Replies: 8
Views: 1,800
Posted By tousled1
A CT scan should be good. Try asking for that.

A CT scan should be good. Try asking for that.
Forum: Keeping Your Mind Off of BC 03-03-2008, 06:25 AM
Replies: 114
Views: 23,690
Posted By tousled1
Praying for all the wonderful women/men on this...

Praying for all the wonderful women/men on this site - both the patients and caregivers. I wish I had a magic wand so that I could cast a spell on everyone that this dreadful beast would be gone...
Forum: her2group 03-03-2008, 06:06 AM
Replies: 18
Views: 8,794
Posted By tousled1
Tonya, It is quite normal not to be able...

Tonya,

It is quite normal not to be able to sleep for a day or two following chemo. It's from the steroid (usually decadron) that is given as a premed. Don't be afraid to ask your doctor for...
Forum: her2group 03-03-2008, 12:47 AM
Replies: 7
Views: 1,872
Posted By tousled1
Jennifer, I was on TCH (Taxol) and my...

Jennifer,

I was on TCH (Taxol) and my premeds were an IV ush of Aloxi for nauseau, decadron, benydryl and tagamet. I also had received Taxatore and had to have the decadron as a premed with...
Forum: her2group 03-03-2008, 12:28 AM
Replies: 20
Views: 4,460
Posted By tousled1
I hadmy port removed about a month after...

I hadmy port removed about a month after finishing Herception. My thought was that if I needed another one ut in I could always get one. Well, I did end up getting another one put in just a few short...
Forum: her2group 03-03-2008, 12:24 AM
Replies: 23
Views: 2,758
Posted By tousled1
Eric, I will keep you and Caryn in my...

Eric,

I will keep you and Caryn in my prayers for Tuesday and every day. I know how difficult it is for you both.
Forum: her2group 03-03-2008, 12:21 AM
Replies: 34
Views: 3,878
Posted By tousled1
Bill, Thanks for brightening my day! I...

Bill,

Thanks for brightening my day! I actually can visualize NED waiting there for me and believe me I'm more than ready to meet him. I really do feel that this combo will work for me. With...
Forum: her2group 03-02-2008, 05:30 PM
Replies: 34
Views: 3,878
Posted By tousled1
I want to thank each and everyone of you for the...

I want to thank each and everyone of you for the wonderful words of concern and support. Pink Girl I love the new picture! I truly don't know what I would do without this wonderful group of...
Forum: her2group 03-01-2008, 11:09 PM
Replies: 34
Views: 3,878
Posted By tousled1
Thumbs up Home from Hospital

I want to thank Marie for keeping everyone informed while I was hospitalized -- also had no computer. My computer crashed last week right before I went into the hospital but as of today we have a new...
Forum: her2group 03-01-2008, 10:35 PM
Replies: 28
Views: 3,960
Posted By tousled1
Esther, It's wonderful to hear such good...

Esther,

It's wonderful to hear such good news! I had CyberKnife for a brain met and all is well. I know that it will take care of your liver met once and for all. Enjoy your skiing. You are...
Forum: her2group 02-18-2008, 07:43 AM
Replies: 23
Views: 3,430
Posted By tousled1
Congratulations Sassy on your three year mark!...

Congratulations Sassy on your three year mark! Celebrate!!!
Forum: her2group 02-18-2008, 07:40 AM
Replies: 10
Views: 1,858
Posted By tousled1
The HER2 Serum test will give you double digits. ...

The HER2 Serum test will give you double digits. A normal reading would be 15 and below.
Forum: her2group 02-18-2008, 07:38 AM
Replies: 22
Views: 4,041
Posted By tousled1
Please accept my deepest sympathy on the loss of...

Please accept my deepest sympathy on the loss of your mother. It's very difficult when we lose someone we love.
Forum: her2group 02-18-2008, 07:35 AM
Replies: 32
Views: 4,498
Posted By tousled1
Hermiracles, I'm so sorry to hear about...

Hermiracles,

I'm so sorry to hear about your progression. I would write a list of questions down on a paper for your oncologist. I know if I don't write a list I leave and then find I forgot...
Forum: her2group 02-18-2008, 07:30 AM
Replies: 21
Views: 3,912
Posted By tousled1
Schoolteacher, I had neoadjunct chemo and...

Schoolteacher,

I had neoadjunct chemo and it did shrink my tumor to almost nothing. I had 4 rounds of Adrymycian and Cytoxan followed by 4 rounds of Taxatore. I then had a bialteral mastectomy....
Forum: her2group 02-15-2008, 11:39 AM
Replies: 16
Views: 3,124
Posted By tousled1
Thanks for sharing your good new Emelie.

Thanks for sharing your good new Emelie.
Forum: her2group 02-15-2008, 08:05 AM
Replies: 6
Views: 1,859
Posted By tousled1
Jan, I agree with Bill. You must slow...

Jan,

I agree with Bill. You must slow down. It seems that it wasn't that long ago that you started the Abraxane so how can you say it isn't working. As for tumor markers -- they are not the...
Forum: her2group 02-13-2008, 02:26 PM
Replies: 10
Views: 2,366
Posted By tousled1
Tricia, Thank you for keeping us posted on...

Tricia,

Thank you for keeping us posted on Carol's progress. Carol is one heck of a warrior. She's to be admired for her determination. I will keep her in my prayers.
Forum: her2group 02-13-2008, 02:23 PM
Replies: 39
Views: 5,198
Posted By tousled1
Steph, Congratulations - what a milestone!...

Steph,

Congratulations - what a milestone! I still get brain MRI every 3 months and am not sure when it will be stretched out a little more. You are truly an inspiration.
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