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Search took 0.01 seconds; generated 70 minute(s) ago. Search: Posts Made By: VirginiaGirl
Forum: her2group 02-22-2010, 12:09 PM
Replies: 11
Views: 2,221
Posted By VirginiaGirl
Re: Anniversary of NED...when does the count begin?

Funny, I've always wondered this, too, but never thought to ask a doctor about it. I went back & forth on whether I wanted my cancerversary to be my diagnosis date or when I found the lump. I've...
Forum: her2group 02-20-2010, 05:55 AM
Replies: 8
Views: 2,918
Posted By VirginiaGirl
Re: Question??Pet scan or Bone scan

Adriana,
My mets are almost always all bone (vertebrae and pelvis). I had one or maybe 2 bone scans initially, but my onc and I both felt we got much better information from a PET/CT as the bone...
Forum: Herceptin / Tykerb 02-20-2010, 04:44 AM
Replies: 19
Views: 10,347
Posted By VirginiaGirl
Re: Tykerb/Xeloda, side effects??

Hi Lori,
I just started Tykerb/Xeloda last week, and so far have only had to deal with sporadic diarhhea, and remembering to take the pills! How are you doing on it? I seem to remember reading...
Forum: her2group 01-30-2010, 05:31 AM
Replies: 2
Views: 1,580
Posted By VirginiaGirl
Re: Is Tykerb more effctive if taken with food?

This is an interesting article, and not especially new. I just met with my onc two days ago to go over how to take Tykerb & Xeloda. (Obviously my signature is not up-to-date, put that on my list of...
Forum: her2group 12-12-2008, 09:05 AM
Replies: 4
Views: 1,446
Posted By VirginiaGirl
Hi Darlene, thanks for your response. I met w/...

Hi Darlene, thanks for your response. I met w/ onc yesterday and with everything we talked about I forgot to tell him about the migraines still happening. I haven't had a brain scan in 2 - 2 1/2...
Forum: her2group 12-11-2008, 07:25 AM
Replies: 4
Views: 1,446
Posted By VirginiaGirl
Herceptin & AI questions

Hi! Question: How long is "long enough" to see if a treatment approach is working? I am trying Femara and Herceptin (every 3 weeks) and have been on this since end of August. My 2nd opinion doc at...
Forum: her2group 12-10-2008, 12:33 PM
Replies: 44
Views: 8,967
Posted By VirginiaGirl
Hi! Question: How long is "long enough" to see if...

Hi! Question: How long is "long enough" to see if a treatment approach is working? I am trying Femara and Herceptin (every 3 weeks) and have been on this since end of August. My 2nd opinion doc at...
Forum: her2group 08-16-2008, 04:50 AM
Replies: 11
Views: 2,299
Posted By VirginiaGirl
Julie, I just went for a 2nd opinion to a breast...

Julie, I just went for a 2nd opinion to a breast cancer specialist at Johns Hopkins, and your question was a main reason I sought that other opinion. My onc and the JH onc (even more so) are both of...
Forum: her2group 10-22-2007, 08:01 AM
Replies: 19
Views: 3,059
Posted By VirginiaGirl
Hi! I'm 7 months out from chemo and while I have...

Hi! I'm 7 months out from chemo and while I have plenty of hair now, it's still short and very curly! I'm a poodle head! I had a hair appointment Friday thinking maybe it was finally long enough to...
Forum: Herceptin / Tykerb 05-13-2007, 05:00 AM
Replies: 7
Views: 3,882
Posted By VirginiaGirl
I, too, have to confess I'm scared. I have a scan...

I, too, have to confess I'm scared. I have a scan coming up Friday. My 9 year old daughter was diagnosed w/ insulin-dependent diabetes just 3 weeks ago, and it took us by surprise. I've had to do...
Forum: her2group 04-24-2007, 05:55 PM
Replies: 3
Views: 1,884
Posted By VirginiaGirl
Chrisy - Thanks for your response, it really does...

Chrisy - Thanks for your response, it really does sound like you were meant to be in this trial! I left another message for my onc today as no one had responded to my previous message from last week....
Forum: her2group 04-20-2007, 06:26 PM
Replies: 3
Views: 1,884
Posted By VirginiaGirl
Chrisy - questions about Tykerb/Avastin trial

How did you get in it so quickly? I want to try this combo, my (community-based) onc said last week he'd look into it for me, but so far no word from him. In fact, for the past 5 weeks or so he's...
Forum: her2group 03-24-2007, 05:52 AM
Replies: 17
Views: 3,154
Posted By VirginiaGirl
I have Hotmail and wondered why I had stopped...

I have Hotmail and wondered why I had stopped getting the one email for a reply to post. I noticed today there was a reply to post in my junk mail, which I rarely remember to check. I will now. I...
Forum: her2group 03-24-2007, 05:23 AM
Replies: 33
Views: 7,006
Posted By VirginiaGirl
I've had mixed reactions to this news, after...

I've had mixed reactions to this news, after sorrow for what she has suffered and will be going through. Grateful for the attention such a public figure will bring to our disease, a little irritated...
Forum: Clinical Trials 03-24-2007, 04:49 AM
Replies: 7
Views: 5,620
Posted By VirginiaGirl
Dear Ragini, I don't know what to say to comfort...

Dear Ragini, I don't know what to say to comfort and inspire you, but please know that I feel your sadness and you are in my thoughts and prayers.
Peace and Blessings,
Forum: her2group 03-18-2007, 05:12 AM
Replies: 6
Views: 2,181
Posted By VirginiaGirl
I have been wondering about the use of Tykerb &...

I have been wondering about the use of Tykerb & Herceptin, also. I just completed my 6th Taxotere & Herceptin (1x/3weeks) and while I have tolerated it well and it has gotten me very close to NED I...
Forum: her2group 02-17-2007, 05:53 AM
Replies: 198
Views: 58,083
Posted By VirginiaGirl
It really is interesting to read about everyone...

It really is interesting to read about everyone and see that in spite of all the diverse backgrounds there are many commonalities, too! I am 41, and have just hit my 2 year survivor mark. My husband,...
Forum: her2group 01-30-2007, 03:56 PM
Replies: 8
Views: 2,046
Posted By VirginiaGirl
Thanks to everyone for replying! When I asked the...

Thanks to everyone for replying! When I asked the nurse at my onc's office, she said it was to give the chemo drugs time to get out of my system to keep the readings more accurate. It just surprised...
Forum: her2group 01-30-2007, 03:42 PM
Replies: 22
Views: 4,173
Posted By VirginiaGirl
Smile Beth -

Thanks to you (& your husband) for the laugh!
Forum: her2group 01-28-2007, 05:59 AM
Replies: 8
Views: 2,046
Posted By VirginiaGirl
Scheduling scans during treatment?

I'm due for a PET/CT combo scan to evaluate my response to Taxotere/Herceptin and when I called to schedule they said I have to be three weeks out from my last treatment (I'm on a three-week...
Forum: her2group 01-27-2007, 07:26 AM
Replies: 22
Views: 4,173
Posted By VirginiaGirl
Ditto, ditto. Since I wasn't sure if I would thin...

Ditto, ditto. Since I wasn't sure if I would thin or loose it all, I went about 3 weeks dealing with hair loss in my bed, in my shower. I let my 9 year old daughter cut my long hair any way she...
Forum: her2group 01-27-2007, 06:59 AM
Replies: 8
Views: 2,073
Posted By VirginiaGirl
I too get some bad heartburn for several days...

I too get some bad heartburn for several days after my Taxotere/Herceptin treatments. I have a hiatal (sp?) hernia, too, but over the counter stuff usually helps. I don't recall if I had this problem...
Forum: her2group 01-27-2007, 06:51 AM
Replies: 7
Views: 2,187
Posted By VirginiaGirl
Smile We have raised several litters of puppies, and...

We have raised several litters of puppies, and there is nothing like it! They are tons of work, but bring tons of joy, too. It's almost impossible to feel bad with 1/2 dozen puppies crawling over you...
Forum: her2group 01-13-2007, 06:11 AM
Replies: 7
Views: 2,196
Posted By VirginiaGirl
Ann, I have bone mets but can't say for sure what...

Ann, I have bone mets but can't say for sure what bone pain feels like. I actually don't have any pain, now. What I have had seemed more like nerve pain, lasting various lengths of time and in...
Forum: her2group 01-09-2007, 05:03 AM
Replies: 22
Views: 4,480
Posted By VirginiaGirl
Dear Kelly, I know those kind of days you've been...

Dear Kelly, I know those kind of days you've been having, it's hard when you're freaked out but trying to keep it together and be strong in front of the kids. I usually cry in the shower for that...
Showing results 26 to 50 of 80
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