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Posts Made By:
supportwife
Forum:
her2group
03-09-2020, 11:22 AM
Replies:
2
Corona Virus
Views:
3,349
Posted By
supportwife
Corona Virus
Hello Friends,
How are infusion centers and oncologists responding to Corona Virus? Are they taking extra precautions for patients?
Thanks
Forum:
Herceptin / Tykerb
01-09-2020, 11:40 AM
Replies:
10
After 9 years on Herceptin,heart ef crash
Views:
10,710
Posted By
supportwife
Re: After 9 years on Herceptin,heart ef crash
My wife experienced the same thing, however the doctor prescribed an ace inhibitor carvedilol and she was back on herceptin. Hope it helps.
Forum:
her2group
11-18-2019, 10:37 AM
Replies:
10
Wife's Demise
Views:
9,830
Posted By
supportwife
Re: Wife's Demise
Thanks everyone for the kind words. Seems like yesterday when she was diagnosed at 35, 2 weeks after her birthday. Seven years passed by so fast. She put on a very brave fight for the kids. ...
Forum:
her2group
10-03-2019, 09:04 AM
Replies:
10
Wife's Demise
Views:
9,830
Posted By
supportwife
Wife's Demise
Hello All,
It’s with a sad heart I say that my true friend, my soulmate, a loving mother and my wife Sarada passed away yesterday after a strong 7 year battle with cancer.
Thanks a lot for...
Forum:
her2group
04-23-2019, 10:24 AM
Replies:
7
Could this be Skin Mets?
Views:
3,338
Posted By
supportwife
Re: Could this be Skin Mets?
Hello,
My wife has been fighting skin mets for past 7 years. She underwent several rounds of chemo and 90 radiations to the skin ( a life time max ). Having said that, there were time when there...
Forum:
her2group
09-17-2018, 09:33 AM
Replies:
7
DS-8201A Trial
Views:
4,519
Posted By
supportwife
Re: DS-8201A Trial
Thanks Donna, The only thing that's bothering her right now is extreme fatigue and nausea.
Forum:
her2group
09-14-2018, 09:46 AM
Replies:
7
DS-8201A Trial
Views:
4,519
Posted By
supportwife
Re: DS-8201A Trial
Thanks All,
The scans came out okay. Brain clear, CT clear except for insignificant increate in lymph nodes. Eye exam clear. My wife had her first infusion of DS-8201 yesterday. So far nothing...
Forum:
her2group
09-05-2018, 10:40 AM
Replies:
7
DS-8201A Trial
Views:
4,519
Posted By
supportwife
DS-8201A Trial
Hi Friends,
My wife is enrolling in the ds8201 trial. However, prior to trial the doctors want her to go through a list of tests. I can understand CT, Brain MRI etc. However they are asking her...
Forum:
Herceptin / Tykerb
02-22-2018, 12:09 PM
Replies:
7
Lisa D
Views:
6,473
Posted By
supportwife
Re: Lisa D
Hi Lisa,
My wife had the same issue while on herceptin alone and she was put on coreg ( minimum dose ) to bring back the LVEF back to normal. Once that was done she continued with Herceptin. As...
Forum:
her2group
01-19-2018, 10:15 AM
Replies:
31
Need input, KADCYLA or TAS116?
Views:
11,930
Posted By
supportwife
Re: Need input, KADCYLA or TAS116?
Hi Kim,
Since you have been on Kadcyla for so long, has it happened that they have suspended treatment for a few weeks to get platelets up? My wife was on kadcyla in the past, they switched...
Forum:
her2group
01-18-2018, 02:34 PM
Replies:
40
Amy? (Mtngrl)
Views:
23,329
Posted By
supportwife
Re: Amy? (Mtngrl)
RIP Amy. You were such an inspiration. Whatever little interaction we had, you were so supportive of my wife's situation, in spite of all the turbulences you went through. Will miss you and your...
Forum:
her2group
10-30-2017, 12:35 PM
Replies:
13
Any good chemos I could try?
Views:
7,696
Posted By
supportwife
Re: Any good chemos I could try?
Hi Amy,
Did you look into the option of Tucatinib, apparently it has shown good results for brain mets.
Forum:
her2group
02-23-2017, 03:54 PM
Replies:
9
Surgery for cutaneous mets
Views:
5,617
Posted By
supportwife
Re: Surgery for cutaneous mets
Hi Steve,
Are you in US? I have been researching for places which offer electro chemotherapy here.
Thanks
Forum:
her2group
02-23-2017, 12:19 PM
Replies:
4
Is late afternoon and evening tiredness a side effect ?
Views:
4,782
Posted By
supportwife
Re: Is late afternoon and evening tiredness a side effect ?
With continuous treatments, my wife experiences the same symptoms. She needs her afternoon nap otherwise by evening she feels dog tired.
Forum:
her2group
02-23-2017, 12:17 PM
Replies:
9
Surgery for cutaneous mets
Views:
5,617
Posted By
supportwife
Re: Surgery for cutaneous mets
My wife has cutaneous mets, however the surgeons have stated that it would be very hard to surgically excise a cutaneous met. The skin being such a large organ and since they cannot determine the...
Forum:
her2group
02-21-2017, 01:29 PM
Replies:
5
Any of you have Axillary Web Syndrome?
Views:
7,134
Posted By
supportwife
Re: Any of you have Axillary Web Syndrome?
Hi Brenda,
My wife started experiencing something similar since December in her left hand. Doctors did an MRI to see if they could see anything but there wasn't anything in her left arm other...
Forum:
her2group
02-17-2017, 12:05 PM
Replies:
9
CT scan vs PET scan
Views:
4,947
Posted By
supportwife
Re: CT scan vs PET scan
Here in America and we have been to two premium university hospitals, they have never done PET scan for my wife. They did it only once for radiation planning. The doctors are very comfortable with...
Forum:
her2group
02-16-2017, 02:59 PM
Replies:
12
Sophia
Views:
5,397
Posted By
supportwife
Re: Sophia
Thanks a lot Phil, I am hoping Xeloda works with herceptin.
Forum:
her2group
02-14-2017, 01:27 PM
Replies:
12
Sophia
Views:
5,397
Posted By
supportwife
Re: Sophia
So my wife was randomized into the Xeloda+Herceptin arm. We were so hoping to get MGAH22. The doctor said, give it 6-9 weeks and see how it helps. If not then go the next one. 9 weeks wait it is.
Forum:
her2group
02-08-2017, 01:01 PM
Replies:
9
Any information on these trials would be helpful
Views:
8,806
Posted By
supportwife
Re: Any information on these trials would be helpful
I talked to the trial coordinator, they said we will know what drugs we are going to get once we are randomized. At that point we are free to decide whether we want to participate at that time. ...
Forum:
her2group
02-06-2017, 03:00 PM
Replies:
9
Any information on these trials would be helpful
Views:
8,806
Posted By
supportwife
Re: Any information on these trials would be helpful
Thanks Tiffany, Doctor is suggesting we enroll into Margetuximab trial first. If we enroll into Keytruda trial we will not be eligible for Margetuximab trial later. If for some reason it fails we...
Forum:
her2group
02-02-2017, 10:58 AM
Replies:
12
Sophia
Views:
5,397
Posted By
supportwife
Re: Sophia
My wife is getting into the SOPHIA trial with Margetuximab + chemo. Here in California it is a blinded trial. THe options are MGAH22+chemo or Herceptin+chemo. We are not sure which side we are...
Forum:
her2group
01-30-2017, 10:51 AM
Replies:
9
Any information on these trials would be helpful
Views:
8,806
Posted By
supportwife
Any information on these trials would be helpful
Hi All,
we are evaluating if my wife is eligible for these trials for her skin mets.
1. Margetuximab with Vinorelbine
2. Pembroluzimab with herceptin and Vorinostat.
Forum:
her2group
01-05-2017, 01:08 AM
Replies:
1
Anybody using immunotherapy for her2+
Views:
3,251
Posted By
supportwife
Anybody using immunotherapy for her2+
Hi All,
currently my wife is getting treated for skin mets and currently on ASTELLAS trial, which is getting Enzalutamide + herceptin. it worked for a while but now the doctor is considering...
Forum:
her2group
08-03-2016, 12:48 PM
Replies:
2
Medical Insurance question
Views:
4,378
Posted By
supportwife
Medical Insurance question
Hi All,
Currently My wife , mykids and I are on my wife's medical insurance plan through her company. However starting December, that will end as she is going to be switched to Medicare as she is...
Showing results 1 to 25 of 48
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