Triple Positive research.

[Hadit]

HI, I'm new here (triple positive). I ended treatment , Herceptin, last month and am on Arimidex. The pain in unbearable at times. Does anyone have any info as to what / where treatment is going with triple positive bc? I'm wrestling with whether to keep my port in for the next 2 years as my dr suggests. He said we have a 20% chance of reccurence. That seems low to need to keep my port in for that much time. I'm trying to learn as much as I can about triple positive so if anyone knows where I can get more plz let me know. thanks

[MaineRottweilers]

Hello, Hadit and welcome.

I am not triple positive but I am on Airmidex too. When I first started on it, the joint pain was terrible, just terrible. My MO had me go off it for a few weeks and restart it. It was much more tolerable on the restart. I have no idea why this worked but it's worth asking if you can try.

I rushed to get my port out, I hated it. I regretted it but it was easy enough to put back in a little over a year later. If you don't hate it, wait a bit but if you do, it's easy enough to install a new one if you should have.

[Hadit]

thanks, Are you being treated as "triple negative"?. I see your dx and know someone else who has the same and that's how they're being treated. I will try doing the "off Arimidex" for a while and see if that helps.

[MaineRottweilers]

I am ER- PR+ (50%) and HER2+++ and since PR+ in absence of ER+ has unknown clinical significance, they treat me as though I am a triple positive patient, thus the Arimidex.

[Hadit]

how long did you go off Arimidex before going back on?

[MaineRottweilers]

One month.

[NMoulton]

My sister also has breast cancer but not the triple negative one. She is undergoing treatment in New York. The oncologist there are very helpful and supportive in case of treatment.