Esther
02-12-2006, 04:18 PM
This is just my 2 cents for what it's worth.... I don't want to offend anyone, but here it goes.
Depending on what I'm goind through I will either log in daily or sometimes just weekly. I read alot of the posts just to get to know the posters and keep up with they are going through. I respond to a post if there is something that I feel I can add information wise or support wise.
Who the original poster of the message is does not matter at all to me...just that it is a fellow BC journeyer, I help whoever I can whether I know them or not, new or oldie on the board.
I was offended by the tone taken by Aquinis, in that it felt that it went to an attack on some of the long-standing members of this board, insinuating that help was only proferred to a chosen few, or to some in an inner circle. I did not respond at the time because that is so far from the truth that I did not want to post a knee jerk response to it.
We all help when we can, but then again noone has the right to demand instant responses, and get indignant when they do not materialize. We are all just going through this journey together, and do as much as we can, when we can.
Myself, I'm probably one of the one's who could have responded to that query, but did not immediately respond because I was on a 10 day ski trip to Telluride, CO and did not have the time to respond. I was treated for 14 months with Herceptin, Navelbine and Xeloda for an extremely advanced case of liver mets. After 14 months, I needed a break, and went on just Herceptin, thinking I would return to chemo after my body recovered a bit. Within 2 months I was NED on just Herceptin!! I didn't even know this could happen. I have been NED for bone and liver mets for a year now, just on Herceptin.
Long may this last!!!
Anyway, don't mean to offend anyone with this post, but please do remember we're all in the same situation here and will gladly help anytime we can.
Depending on what I'm goind through I will either log in daily or sometimes just weekly. I read alot of the posts just to get to know the posters and keep up with they are going through. I respond to a post if there is something that I feel I can add information wise or support wise.
Who the original poster of the message is does not matter at all to me...just that it is a fellow BC journeyer, I help whoever I can whether I know them or not, new or oldie on the board.
I was offended by the tone taken by Aquinis, in that it felt that it went to an attack on some of the long-standing members of this board, insinuating that help was only proferred to a chosen few, or to some in an inner circle. I did not respond at the time because that is so far from the truth that I did not want to post a knee jerk response to it.
We all help when we can, but then again noone has the right to demand instant responses, and get indignant when they do not materialize. We are all just going through this journey together, and do as much as we can, when we can.
Myself, I'm probably one of the one's who could have responded to that query, but did not immediately respond because I was on a 10 day ski trip to Telluride, CO and did not have the time to respond. I was treated for 14 months with Herceptin, Navelbine and Xeloda for an extremely advanced case of liver mets. After 14 months, I needed a break, and went on just Herceptin, thinking I would return to chemo after my body recovered a bit. Within 2 months I was NED on just Herceptin!! I didn't even know this could happen. I have been NED for bone and liver mets for a year now, just on Herceptin.
Long may this last!!!
Anyway, don't mean to offend anyone with this post, but please do remember we're all in the same situation here and will gladly help anytime we can.