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Re: Ovarian And Breast Cancer Counseling And Testing Not Offered According To Guideli
I owe it to the sisters of this Board for learning these important issues related to hereditary cancer.
My oncologist did not think it was possible for me to carry the BRCA genes. He reluctantly agreed to order the test for me - turned out I did have a BRCA1 - Variant of Unknown Significance. Since there's not many reported cases of BRCA1-VUS, we put the report aside after talking to the genetic counslor who had assisted me with charting my family cancer history.
Less than a year after getting tested, the news of my 2nd Brother's undergoing colon cancer surgery and treatment alarmed me. Mother has already had surgery and chemo for Non-Hodgkins Lymphoma in 1998 - there's an obvious cancer link in my family. An Internet research turned up a new acronym: HNPCC (Hereditary Non-polyposis Colon Cancer)
So I requested for a hysterectomy/oophorectomy. The surgeon's order listed "family and personal cancer history; BRCA1" as the reason for my prophylactic surgery.
After the surgery, I was told that there's sign of hyperplasia in my uterus already.
My lips are no longer peeling (dry skin on my lips have always been a sign of physical problem because inflammation raises body temperature) and my facial skin has also been improving (another sign of being healthy.)
I've also learned interesting historical facts (Marcia told me about the history of Jews in Kaifeng, China) that fit my family history.
Be sure to get tested for the BRCA genes... And learn as much as you can about your family [cancer] history.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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