Brain mets Help! Turned down for Temodar

[juliehere]

I have 10 brain mets. Am so scared. They want to start me on Xeloda/Tykerb in a few days. My insurance won't ok the Temodar, which is what i want. Does anyone have any data to support Temodar that i can give them? Can you take Boswella along with the steroid for brain swelling? I want to get some, but don't know if I can take it together. I want to avoid wbr, going to a specialist Wed to see if he can do the srs with 10 mets. Please help me. I don't know what to do.

Thank-you everyone,
Julie

[Ellie F]

Hi Julie
Please read the thread from midwest alice about Leslie. Courtney has replied sharing her experiences which are inspirational!
Good luck
Ellie

http://her2support.org/vbulletin/showthread.php?t=47198

looked up via search temodar Lani and found the following threads:

Starter Last Post Replies Views Forum

More Brain Mets - New Plan Thoughts? ( 1 2 3)
CourtneyL
11-02-2010 07:41 PM
by flynny
41 1,573 her2group

Lani, propeller heads, and WBR sisters/brothers ~ looking for info and ideas ( 1 2 3)
hutchibk
09-09-2009 09:00 AM
by hutchibk
46 860 her2group

Update: Spinal Fluid me ( 1 2)
pattyz
08-27-2009 02:17 PM
by hannah
21 515 her2group

for Mighty Oak and all those battling brain mets
Lani
07-21-2009 11:27 PM
by Believe51
4 163 her2group

~Too Many Brain Mets To Count~Mighty Oak's Saga Continues... ( 1 2 3 ... Last Page)
Believe51
06-24-2009 01:13 AM
by Believe51
91 1,636 her2group

Need to help my mom! [In desperate need of Tykerb]
Bobby