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07-26-2010, 08:32 PM
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#1
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Senior Member
Join Date: Feb 2010
Posts: 151
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feet swelling..can it be from herceptin and heart?
my right foot is so swollen. I have never had a problem with any type of swelling. I got my first 3 week dose of herceptin today. I wonder if the taxotere problems with my toenails could have made it swell or it herceptin could have made it worse.
I remember when my mom had her feet to swell the doctor said she was maintaining water around her heart and when that happens, the fluid can drain to your feet and legs. any one know any thing on this?
i have minor lymphedema in my left arm. never had any problems with it for months and now my arm is getting thick. i put the sleeve on and been wearing itdaily. my knuckles, which are not covered by sleeve or glove is all swollen and puffy. i had to take off all my rings. my toes and fingers are tingling too. numb at times, especially my fingers.
jsut wondering if anyone has had any experience with this type of swelling and numbness. i was so excited today to get herceptin and no more chemo. i still am excited but concerned about this swelling in my foot and lower leg.
thanks!!
__________________
Mammogram Sep 21, 2009 everything good and clear
DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56
modified radical masectomy on LEFT side 29 Jan 2010
2.7 cm 18/31 nodes
mets to just above collar bone ( 2 nodes showed in PET)
ER- PR - / Her2 +++ (IHC) Stage 111 C
ki-67 60% nottingham score 7
A/C chemo mar 22,2010 DD
herceptin & taxotere DD june 1,2010
finished taxotere july 12, 2010
finished herceptin 16 May 2011
PET Scan 9 Aug 10, cancer in neck is gone! NED
33 Rads completed 1 Oct 2010
PET/CT Scan 6 Jan 2011 NED
PET/CT Scan 3 Aug 2011
MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11
26 Aug 2011 NED
20 Feb 2012 NED
5 Mar 2012 PORT OUT
12 July 2012 DIEP breast reconstruction
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15 Nov 2012 new breast tweeked and natural breast uplifted and implant added
17 Feb 2013 NED
27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment.
"Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.
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07-27-2010, 12:32 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: feet swelling..can it be from herceptin and heart?
Hi Candlegranny,
I have'nt had this myself, but it may worth mentioning it to your onc or chemo nurse's, they may refer you to another specialist to check this out.
I did'nt have this on herceptin so not sure what it can be, if it does'nt subside I'd make the call though!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-27-2010, 01:13 PM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: feet swelling..can it be from herceptin and heart?
Candlegranny,
I was half way through chemo when I experienced 'swollen knees' after my 'walking' exercise. My oncologist did not say anything. I naturally cut down my exercise and tried to stay still more so there wouldn't be more fluid cumulating in that area.
After chemo was complete, I was given 'weekly' Herceptin until the MUGA score showed continued decline. So I had to be taken off Herceptin at 22 weeks (18 weeks combined chemo and 4 weekly Herceptin.)
The fluid gets cumulated in the tissue when our heart is too weak to pump the fluid back.
I've heard that the tingling is more related to the Taxane stuff because it affects the nerve endings.
I wear my compression sleeve and glove daily for at least 8 hours - and any time when I'm doing anything strenuous. Do a 'lymphedema' search and you'll find some of the discussions previously posted on how to manage lympedema.
Hope you are feeling/getting better. Don't forget to talk to your doctor/nurse/lymphedema therapist about those problems.
__________________
Jackie07
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07-27-2010, 02:23 PM
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#4
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: feet swelling..can it be from herceptin and heart?
Candlegranny,
I have skinny legs but my ankles became "cankles". I went back to see when that was. Turns out it was during Taxol. My heart was fine but my ankles were huge.
I am sorry about your discomfort.
Hang in there!
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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07-27-2010, 02:55 PM
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#5
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Senior Member
Join Date: Feb 2010
Posts: 151
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Re: feet swelling..can it be from herceptin and heart?
thank you Maureen and everyone. I will see lymphendma therapist in the morning, My onc told me to wait and see what she determines. I would gladly welcome this as a side effect of taxotere :-) I have had alot of side effects from taxotere, all I could overcome I am glad to say. It will be alot easier to deal with once we find out what is causing it. My oncologist said my MUGA was perfect so hopefully it is not my heart and i can continue herceptin. Bonita
__________________
Mammogram Sep 21, 2009 everything good and clear
DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56
modified radical masectomy on LEFT side 29 Jan 2010
2.7 cm 18/31 nodes
mets to just above collar bone ( 2 nodes showed in PET)
ER- PR - / Her2 +++ (IHC) Stage 111 C
ki-67 60% nottingham score 7
A/C chemo mar 22,2010 DD
herceptin & taxotere DD june 1,2010
finished taxotere july 12, 2010
finished herceptin 16 May 2011
PET Scan 9 Aug 10, cancer in neck is gone! NED
33 Rads completed 1 Oct 2010
PET/CT Scan 6 Jan 2011 NED
PET/CT Scan 3 Aug 2011
MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11
26 Aug 2011 NED
20 Feb 2012 NED
5 Mar 2012 PORT OUT
12 July 2012 DIEP breast reconstruction
23 Aug 2012 NED
15 Nov 2012 new breast tweeked and natural breast uplifted and implant added
17 Feb 2013 NED
27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment.
"Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.
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07-28-2010, 07:36 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: feet swelling..can it be from herceptin and heart?
Hello,
ask you onc and nurses about it. I had very swollen feet during chemo (Taxol) also taking Herceptin but neither my onc nor nurses were concerned!!! I slept with many pillows under my feet so that they were raised high above my heart - my decision no one told me to do that but just seemed to make sense to me. Like you I wondered about heart but I'm still here 6 years later so...... I also had fluid in the lungs which I wondered about but.... no worries from the pros!!! lol!!! Just grateful to still be enjoying things.
Ask questions, get answers,
health and happiness
sarah
__________________
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07-28-2010, 09:26 AM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Re: feet swelling..can it be from herceptin and heart?
Peripheral Edema is a side effect of Herceptin: http://www.drugs.com/sfx/herceptin-side-effects.html
My onc advised me of this possibility prior to my tx. Thankfully, I did not experience it. I suggest you discuss it with him or his nurse.
Best of luck to you,
Hopeful |
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07-28-2010, 09:35 AM
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#8
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Junior Member
Join Date: Jul 2010
Posts: 3
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Re: feet swelling..can it be from herceptin and heart?
My left ankle swelled huge after my first dose of Herceptin and my alarmed onc sent me on a lengthy wild goose-chase to check there was no clot and that my heart ejection was fine. All was fine. The same swelling has happened (generally to both ankles) soon after every dose of Herceptin. I've heard many ladies report the same thing. But every MUGA scan has come back normal for me. So it's probably no cause for alarm for you either!
All the best to you!
Lucy
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