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Old 09-05-2008, 09:54 PM   #1
Sherryg683
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Cutting edge treatments

After watching tonights show on cancer it made me aware of all the cutting edge treatments and techniques and trials
that are available now. How do you find the places that do this type of treatments and what does it take to quality. I would be very much interested in taking a new approach to try and keep this beast away but my oncologist never suggests anything, just keep going on like I am. Anyone up to date on how to find where these are done. I would like to do more than just sit here and wait for it to come back, I want to be proactive. sherryg683
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 09-06-2008, 08:03 AM   #2
juanita
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I agree! My onc just tells me to keep doing what I'm doing and he'll see in whatever months. I've wondered if there was more I could be doing.
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Old 09-06-2008, 08:40 AM   #3
Brenda_D
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I watched it on NBC and it had a couple cut in's for the Siteman Cancer Center in St. Louis. I'd think that a Center like that would have info on cutting edge treatments.
Siteman is also a research facility.
I think if I were to re-occur, I'd like to go to Siteman.
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Old 09-08-2008, 11:38 AM   #4
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Thumbs up Happy Happy Joy Joy

On the first special I was so proud to see that the "Trilogy" machine made the news. Rhode Island was the first to use this "Magic Machine"; we developed it right here. Two years ago I went to speak at a BC seminar and that is when I was first introduced to it! Shows great promise.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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