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Old 09-04-2008, 04:51 PM   #1
Sheila
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Welcome Back STILLHERE we missed you!!!!

Karen
I was so happy to see your smiling face on a recent post...Welcome back....we have missed your posts!
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin

Last edited by Sheila; 09-05-2008 at 04:35 AM..
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Old 09-04-2008, 05:48 PM   #2
Bill
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Yes, we did miss you! Welcome back, sweetie!
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Old 09-04-2008, 07:05 PM   #3
StillHere
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Depression/Back to Full Time/Guilt

Thank you all for your private and public well wishes! I wish I could explain to you why I shut down socially when depression hits. It runs in my family. I have always had difficulty with post partum & pre menstrual depression, so I am quite sure it is hormones, or in this case lack there of. I did not realize going back to full-time after working half time for 1 year would be such a drain on my energy. I would work late, eat, and go to bed. The longer I stayed away from the board the more guilty I felt. Then it got to the point, I was too afraid to look at the board Incas someone had passed and I was not there for support. It was a never ending vicious circle in my head. For some reason I do this with B-day and X-mas cards. I have not opened x-mas cards for the past two years because I did not send any out and felt too guilty reading greetings from others who were not so lazy. I did change from Zoloft to Effexor because it is suppose to be better for hot flashes. That was over a year a go, so is probably not the reason. I sure hope my daughter does not have to go through this. I have a lot of catching up to do. Trying to read so posts each night now. Good news is I bought a new puppy last month. She is a Yorkie/Shitzu mix and 3.1 lb bundle of energy and very entertaining. I named her Zoey. My sister looked the name up and said it means LIFE. Go figure. Love to all you and your families. Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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Old 09-04-2008, 09:21 PM   #4
chrisy
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Karen,
It's so great to "see" you back...I missed you so!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-05-2008, 08:03 AM   #5
PinkGirl
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Smile

I welcomed you back in an e-mail, and I'll do it again here.
We definitely missed you Karen and it is so nice to have you
back posting.

You don't have to explain a thing to us if you don't want to.
Please stay well !!!
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 09-05-2008, 08:13 AM   #6
Vi Schorpp
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Hi Karen

it's good to see you back. We all struggle with different issues, so never feel guilt or shame. As far as the X-Mas cards, maybe you can approach it this way. HUG THE MONSTER! Purchase your greeting cards early. Pick one card you haven't opened yet, and prepare an envelope for that person. Then, open their card and read their good wishes. That will make it easier to prepare their card early, and no pressure on you. Do one or two a week. Don't mail or seal them yet in case you want to add anything before you're ready to mail them.

In any event, many people don't send cards any more. There's no reason to apologize for that.

Take care and be well. Glad you're back.
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Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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Old 09-05-2008, 12:36 PM   #7
juanita
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Welcome back! Give yourself a break and ask someone to help you. I know, easier said than done, but it sounds like you need it.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 09-05-2008, 02:46 PM   #8
Lien
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Dear Karen,

Glad you're back and good to hear you've got a new puppy. About the X-mas cards and Birthday cards: some people enjoy sending them, and that's fine. But for you it has become a chore and the whole issue makes you feel guilty and you feel bad about yourself. Do you think your true friends want you to feel guilty and bad? No they don't. They'd rather do without the card and lift that burden off your shoulders. So don't send cards. Play with the puppy. Read a book. Eat some cake. Do things that make YOU feel good.
You've been through a lot. You deserve a break.

And if people are upset about not receiving cards? It's their problem. They are not true friends. They don't deserve your friendship. So they don't need to be sent a card. Simple as that.

If they complain about this, give them my email address and tell them to take their complaints to me. I'll deal with them, nicely but firmly.

Hugs

Lien
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 09-05-2008, 04:16 PM   #9
Mary Anne in TX
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However and whenever we get to have you back we celebrate you being here! You're one terrific kid and muchly missed when gone! Do whatever you need to do. My mom and I both battled depression and I still do at times. I've kinda taken the attitude of "it will pass". Much love, ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 09-08-2008, 10:39 AM   #10
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Thumbs up Hey Karen

I want to thank you for responding to one of my posts. It was such a surprise to hear from you and I was so estatic to read your post. We have been wondering how you are and your family here is so happy to know you are 'STILLHERE', (smiling).

Sorry life has thrown some things at you but please know how deeply you are loved. Depression is a horrible thing and I am so sorry you had to be at that place. Glad you are feeling more like yourself. Looking forward to hearing about how things are going now, especially that baby puppy dog!!>>I Love You>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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