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08-30-2008, 07:23 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Anyone becoming affected by Hurricane Gustav?...
Please check in when you can and let us know how you are? Take care and God bless.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-30-2008, 09:22 PM
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#2
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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As of now, it looks like it is heading straight for us. I live in Baton Rouge, 60 miles from New Orleans. We have a generator, which is a life saver and lots of food. We have so many hurricane around here you get sort of use to it. We are enough inland though that the worst that usually happens it a lot of knocked down trees and electricity outages. We were without electricity for over a week with Katrina..tks for asking. I'll let you all know how it goes when I get electricity back after it hits...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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08-31-2008, 06:01 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Stay safe, Sherry! I love Baton Rouge! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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08-31-2008, 01:06 PM
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#4
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Guest
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Affected by Gustav
Hi there! I just got out of NOLA yesterday after another small surgery. AMTRAK cancelled my train and commondeered it to take evacuees North to Memphis they would NOT take me as a paying passenger/post surgery and drop me off at home here in Jackson,MS. I have three drians and apain pump and was incredulous that they could cancel ones transportation with only and 18 notice out of a city under a state of emergency. Guess paying passengers dont give them the positive media coverage they want/need. (Can you tell I am still PO'd?) I am a Katrina survivor (was in treatment during) and am well aware the need for mass transit for ALL.
Got a ride out yesterday morning and we are preparing for possible tornados etc...SherryG I will be thinking of you!!! Stay safe!
Marcia (Soccermom) who got logged out a while back and am too preoccupied to reset log-in.
Love to all!
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08-31-2008, 01:09 PM
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#5
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Guest
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jmFSQY
Sherry...if you need to get out you can come here...228-365-4881 or 601-919-8074
LOve ,marcia
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08-31-2008, 02:42 PM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Everyone, just head north! Far and fast! Bless you ladies. Keep us updated.
I have two friends who have chosen not to leave and I am disgusted with them. One is in Uptown, one near UNO and only blocks from Ponchartrain. They both lost almost everything in last time, but they did both evacuate last time. They think they will be able to 'ride it out'. Needless to say I expect to run low on sympathy for them. Happy that my friends in Gretna evaced to Lafayette, but I worry they didn't go far enough. Oh well. I will say lots of prayers that it moves through fast with the least amount of damage possible.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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08-31-2008, 04:52 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i'll cross my fingers for all of you!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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08-31-2008, 05:56 PM
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#8
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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After what happened with Katrina, they are taking things a lot more seriously. They have told everyone to evacuate New Orleans, there will be no shelters, no rescues, no aid...GET OUT! They have told everyone if they see anyone on the streets, they had better have a good reason or they will be arrested. It got so out of hand with Katrina, it was a war zone literally. There are still some people that refuse to evacuate. So I figure, if they are that stubborn then they will have to deal with the consequences. Thank you for the offer of shelter, Marcia. We are going to be fine here in Baton Rouge. Of course everyone is getting ready to have no electricity for days but we have boarded up our windows and have a generator and a window air condition unit and are ready to wait it out...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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08-31-2008, 06:02 PM
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#9
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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I'm not joking. Anyone that needs a place to stay is welcome here in my home in the Richmond Va area. I'm advising everyone to read my new "survival packs" thread in the "keeping your mind off of BC" room.
__________________
For Nicola
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09-01-2008, 11:55 AM
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#10
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Now that the hurricane has hit, we can all be thankful that it was not worse. But, I hear on the TV that Baton Rouge is taking quite a hit with high winds and some flooding. Hope Sherryg lives on "higher" ground.
Hubby and I were just looking at our Atlas and find that the highest point in Louisiana is only 535 feet! That is even lower than the highest point in Florida!
"I did not know that!"
We have some other sisters in the storm path such as Leslie in Miss.
And we were shocked with Marcia's story of trying to get home on the train!
P.S. Hard to imagine that one year ago hubby and I were preparing for a 5-day visit to New Orleans. We even took a bus tour that went through the north part of town that had been under water and where still hundreds of FEMA trailers are being lived in. It was no joke to see those dinky things parked in the driveways of homes that were in the slow process of being rebuilt or made liveable.
We also took a drive across Lake Ponchartrain north to Covington. There is ONE causeway with 4 lanes. It takes about 25 minutes under normal traffic conditions to cross that long span! It only takes less than 10 minutes to cross our large Lake Washington, so I got a real appreciation for the size of New Orleans' "lake."
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 09-01-2008 at 04:37 PM..
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09-02-2008, 12:49 PM
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#11
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Heys Buddies
Is everyone alright?? Glad this too has passed. I was not on the computer since Friday but we were saying our prayers for the bunch of you! Lots of Love>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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09-03-2008, 05:19 PM
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#12
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Now there are 3 more on the horizon and I pray that all of you will be safe.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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