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Old 04-25-2008, 05:28 PM   #1
BethC
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Location: Carmel, Indiana
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Radiation's finally finished!

Hi everyone I'm so glad to be finished with radiation! I am surprised at how tender and sore the breast tissue and lymph node areas are. I've been pounding the Advil for about 10 days. Anyway, I'm glad to be done. I have my first appointment with the oncologist since I finished my chemo. I'm wondering if he'll order any tests and if so which ones?
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DX 9-19-07 at age 40
DCIS, Inv. Duct. Car. 3 cm
Positive lymph node biopsy
Er+Pr+Her+++
Carboplatin/Taxotere/Herceptin
10-1-07 -- 1-16-08
Herceptin every 3 weeks until 9/24/08
Lump. and node dissection 2-12-08
BRCA1 and 2 negative
30 rads finished 4-23-08
oophorectomy 5-6-08
Femara started 5/25/08
Zometa for osteoporosis every 6 mo. started 9-24-08

Married 16 years!
3 kids - daughter (10), twin sons (7)
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Old 04-25-2008, 06:01 PM   #2
Chelee
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Beth, I didn't have rads but I can only imagine what a relief it is to be done with it. I'm so glad you have this all behind you. Thats a good idea to take some advil...stay on top of the pain.

You said you wonder if your onc will order tests now that your done with your chemo. All onc's are different. But I would think with chemo and rads behind you he will want to run a PET/CT? That's what mine did and ran labs. But again...each onc does things differently.

At least you got the worse behind you...and that's where we want to keep it. Take care of yourself and get your rest. And congratulations on getting through your treatment. It won't be long till your feeling back to normal. Hang in there and keep us updated.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 04-25-2008, 06:06 PM   #3
Becky
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Congratulations Beth!

When you see your onc, he will prescibe your anti-hormonal (as I noticed you are ER/PR+. And you will continue with Herceptin. Within a week, your skin areas will feel much better. The worst of it is behind you now as you cruise down the survivor highway!
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 04-25-2008, 06:38 PM   #4
Jean
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Beth,
For those of us who have been baked, understand your joy!
You are now entereing the home stretch....the herceptin will
be much easier...all good wishes.

Hugs,
jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 04-25-2008, 07:24 PM   #5
juanita
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Congratulations Beth! You'll start feeling better everyday that goes by. Just don't try to rush into anything.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 04-25-2008, 09:00 PM   #6
Bill
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Congrats, Beth, on finishing your rads! If you were using any special cream, keep it up. Please keep us posted, Best wishes, Bill
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Old 04-25-2008, 10:03 PM   #7
mimiflower07
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congrats Beth...you have done it. Maybe you need a little present to your self for an upcoming trip!!!
Suzanne(warm wishes)
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suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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Old 04-26-2008, 09:02 AM   #8
Jackie07
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Contratulations, Beth.

My doctor gave me a sample lotion-looking gel called "Aquaphor" to put on the radiated area. It helped. I then bought a tube myself. It worked wonders.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 04-26-2008, 09:13 AM   #9
~Bellydancer~
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Posts: 47
Thumbs up Way to go Kiddo!

Wow to be done must be a relief. I am awaiting my start date. I bought some gel with Tea tree oil and aloe vera in it. It does wonders for sun burn and I will see how it works with this.
I am glad that you are almost thru all of this. Keep strong!
~M~
__________________
Michelle Dick
" Adversity Reveals your strength"

Dx August 15th/07
Invasive Ductal Carcinoma
ER/PR- negative, HER2- positive
Stage 11 with tumor size 3.5cm, .7cm satelite node
Sx Oct 2nd/07
Skin sparing mastectomy of left breast
immediate reconstruction DIEP flap
Nodes 0/3 Sentinal Node Biopsy
Chemo started Nov, 3 rounds FEC and 3 rounds Taxotere and Herceptin every three weeks
Radiation 28 Tx ended on June 13/08
Herceptin was stopped due to falling MUGA score (went from 62 down to 42)
Cardiologist Appt June 24th
Ramipril 2x/d to protect heart and hopefully increase LVEF
Officially NED
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Old 04-26-2008, 09:05 PM   #10
Joan M
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Beth, Congratulations on finishing your rads. I understand your relief. I was doing rads, taxol and herceptin at the same time, and during the last week or so I was really dragging. I would get home from work and just flop. The worst is now over! Best, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 04-27-2008, 12:13 PM   #11
lexigirl
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Yay!! Congrats on finishing your rads tx!! Herceptin maintenance was far less taxing on me once I fifnished rads. You have made it over a huge hurdle! Yippee!!!!

Hugs,
Lexi
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