|
02-23-2008, 04:43 PM
|
#1
|
Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
|
hair loss 2nd time
I was told that I will loose my hair again. Did any of you loose your hair once but not the second time? (with the same drugs) I am on Taxotere/Carboplatin/Herceptin. Does it come in curly the second time? I'm thinking because of menopause it might come back grey. I'm only 40 yrs. old but had my ovaries removed so I am post-meno. My hair came back thick dark and curly at first the first time. It eventually went back to my normal hair. Thanks for any input. Sally
|
|
|
02-23-2008, 05:00 PM
|
#2
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Hi Sally, I started losing my hair the second time after starting Taxotere with Hercepin/Xeloda, and ended up shaving it off it got so thin. Now 6 months later am on Taxol/Carbo/Avastin and it's growing back in curley, but gray! (It was dark blond before, but with more and more gray; I'm 53).
I'd had several rounds of other chemos that thin the hair before the T/H/X, so maybe you won't lose it all, it may just thin. Hope so!
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
02-23-2008, 05:50 PM
|
#3
|
Member
Join Date: Jul 2007
Location: New Hampshire
Posts: 11
|
Hi Sally!
I was searching for info on Taxotere when I saw your post. I'm 40 years old too. I am going to be starting another clinical trial 2/29 but if it doesn't prove effective enough, my Onc said next step would be Taxotere/Herceptin. I hope you get some helpful info about this. Take care.
__________________
DX at age 37 on 5/24/05 Left breast IDC and DCIS, high-grade
modified radical skin-sparing mastectomy 7/11/05 with re-con TRAM flap.
tumor size 3.5 cm
HER2 To CEP-17 Ratio = 6.76 positive ER positive
A & C infusions Aug. - Oct. 2005
Taxol & Herceptin infusions Oct. - Dec. 2005
6 weeks radiation completed March 2006
Continued on Herceptin every 3 weeks until 10/24/06
re-occurence left side supraclavicular nodes Jan. 2007
HKI-272 phase 2 Trial Jan. - July 2007 (supra nodes shrunk for awhile)
Enlarged node in chest wall near windpipe.
started Tykerb/Xeloda 8/22/07 (on for 2 months - not working - 3 new liver mets).
11/07 Neupogen(G-CSF)/Herceptin/Navelbine Trial 11/07
2/8/08 Catscan shows 1 of 3 liver mets went from 9 to 24mm.
2/29/08 Phase II trial of Ertumaxomab.
4/10/08 Catscan shows progression on liver mets and 2 new liver mets.
4/11/08 Started Taxotere/Herceptin.
|
|
|
02-23-2008, 09:27 PM
|
#4
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
Hi Sally - In total, I've lost my hair 5 times and had it thin considerably once! My hair is now shoulder length and wavy/curly - same as it always was. There are a few gray hairs sprinkled in there, but I am going to be 45 this year so I guess they'd be there anyway. One friend's hair came in straight and dark, and another's came in curly and white. Everyone is different, but it does come back!!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
02-23-2008, 10:03 PM
|
#5
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
I have lost mine 3 times, each time it has come back 1/3 rat fur brown, 1/3 gray, 1/3 silver... this time since I have been on Xeloda for almost a year, the top hair on top of my head has definitely been thinner and a lot less silver for some reason. Mine has always come back in pretty much the same waviness and texture as it has been for years.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
02-24-2008, 04:27 PM
|
#6
|
Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
|
Thank you so much for the replies. It's nice to know when people are listening and care. I will probably shave my head as soon it starts falling out. Last time it sprinkled down my face everytime I moved my head. I'ts just easier to get rid of it than wait to see how thin it gets. Thanks again. Sally
|
|
|
02-24-2008, 04:42 PM
|
#7
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
Sally - when you shave it, there are always those little nubbies that are left over. I used a tape lint brush to get rid of them. Not only does it clean off your pillow cases, but it pulls the left overs from your scalp. Strange but true...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:29 AM.
|