 |
01-29-2008, 03:22 PM
|
#1
|
|
Senior Member
Join Date: May 2006
Posts: 85
|
Update - Good News
I posted a while back my wife was having major lower back sciatia. We went for and MRI and they thought some of the bone mets(known) were pushing on the nerve bundle. We were redirected to the Radiation Oncologist. At the same time we thought maybe it has started again. Had the CT and bone scans and all is stable(Yeah, Big relief) My wife is now undergoing local radiation to the lower spine. The pain has not gotten much better. I am starting to believe it is a disc problem. She has always had the mets to the bones from the beginning, but I hate to see her in so much pain. The pain meds are not working very well.
Thanks for all the prayers( you guys and gals are my outlet)
Kathy
Stage IV - 2003
Too many to list
|
|
|
|
01-29-2008, 03:26 PM
|
#2
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
So happy all is stable.
Love & Peace,
MaryJo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
01-29-2008, 03:54 PM
|
#3
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Happy to hear that your wife's bone mets are stable. Back disc problems do cause a lot of pain - I speak from experience.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
01-29-2008, 04:45 PM
|
#4
|
|
Senior Member
Join Date: Sep 2006
Location: East Central Illinois
Posts: 89
|
Glad the scans showed it is stable. Hope the radiation gives relief for your wife's back pain. It is hard on you to see her in that pain, plus everything else she has had to face. You sound like my husband, a great supporter and strength.
|
|
|
|
|
01-29-2008, 05:10 PM
|
#5
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Thanks for letting us know the good news, John. I hope and pray they can help with the back pain. I know exactly how that can feel. Stay strong, Bill
|
|
|
|
|
01-29-2008, 05:10 PM
|
#6
|
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
John,
Only here could you say that a disc problem and lower back pain is GOOD NEWS!
That said, I know from years of experience that back pain is no picnic - and I've never had any success from pain meds for it. For me (aside from chiropractic which I would definitely not recommend with a bone mets history), the only and best thing to work has been to walk. And walk and walk. Easy to say, hard to do I know as I've been dealing with this for the past couple of weeks myself.
Hope Kathy's feeling better soon.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
|
|
01-29-2008, 09:07 PM
|
#7
|
|
Senior Member
Join Date: Aug 2006
Posts: 492
|
Hi John- I am happy to hear Kathy's mets are stable. I do not have any experience with mets, but I did suffer from sciatica for years. Pregnancy and beyond. I do not know if this is something that might help- but it sure knocked my pain down to nothing. The SacroWedgy is a little form that you lay on (need a neck pillow or a rolled up towel too) and it helps your pelvic area relax- losing the tension that causes inflammation and pain. It only took a week or so of using it before my pain was gone.
Anyway, it sure helped me and thought it would be worth a mention. Because that kind of pain is severe!
I just found it on Amazon:
http://www.amazon.com/SACRO-WEDGY-St...1665450&sr=8-2
Best to you both,
Margerie
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
|
|
|
|
|
01-29-2008, 09:26 PM
|
#8
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
Thanks for keeping us updated, I hope they can find a way to fix the pain. BB
|
|
|
|
|
01-29-2008, 10:01 PM
|
#9
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
John, so glad that things are stable. Is there a pain specialist in your area? There are pain patches available now, which I've read can work in conjunction with the oral pain meds to get control of the pain. Hope things settle down soon.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
|
|
01-30-2008, 02:54 PM
|
#10
|
|
Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
|
I also have lower back pain. It's no picnic. After dealing with cancer you'd think life would let us live pain free. Not!! We have all the aches and pains everyone else has -- only we wonder if it's a recurrence. Glad your wife is ok. Life is good.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 03:22 AM.
|
Linear Mode
