HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-16-2007, 06:07 PM   #1
penelope
Senior Member
 
Join Date: Jun 2006
Posts: 153
ok all you nutritional gurus....

I saw a family practice MD. His specialty is nutritional therapy and intergrative medicine.

Given my stats he put me on a formula that he had made for me special and I would like to know what you all think about it.

Just to put it out there as well, this doctor has been in practice many, many years. I have seen him a few times before he began this specialty.

What he made for me was the following...
reishi mushroom 500mg
milk thistle 100 mg
grape see 100 mg
american ginseng 100mg
turkey tails mushroom 100mg

This is all formulated in one pill by a local pharmacist. I am to take it twice a day in addition to...

Fish oil and flax oil
Vitamin C
green tea
CoQ10
zinc
slenium 200mcg
a probiotic complex

He also recomended that I have 1 tsp of flax seed a day and work my way up to 2 tlb spoons daily.

What do you all think? I am unsure about all the flax??? I am er- but doesn't it seem like I should stay away from estrogens?? Anyone know about mushrooms???

Input is most welcome.
__________________

penelope is offline   Reply With Quote
Old 11-16-2007, 07:14 PM   #2
SoCalGal
Senior Member
 
SoCalGal's Avatar
 
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
yes on the flax

I use 2 tablespoons ground flax in my protein shake everyday. I take a bunch of vitamins, fish oil, coQ, and also a probiotic. I don't take any green tea. But I drink it on occasion. I don't know about the herbal things - I'd have a hard time swallowing the turkey tail. lol
xoFlori
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.

Last edited by SoCalGal; 11-16-2007 at 07:16 PM.. Reason: words disappeared
SoCalGal is offline   Reply With Quote
Old 11-16-2007, 10:05 PM   #3
janet/FL
Senior Member
 
Join Date: Sep 2005
Posts: 312
Penelope, this is kind of off/on the subject of your post. It is how to test for individual nutritional needs. Have you or anyone had nutritional testing? I had a blood test prior to chemo that said I was in need of certain nutrinets. I would think now that I have different needs.
I went to a new doctor, an MD, and he wanted to do a hair or saliva test for nutrients. I said that Consumers Report had done a study of labs doing hair analysis and that they very unreliable. I don't think saliva testing could be much better particularly when compared to blood. The blood test was over $500.00 and much to my surprise, BC/BS paid for it.
I want to get a second blood test, and am not sure what to tell this new doctor. Dr. Andrew Weil does not like the hair or saliva tests. I wonder about my doctor if he thinks the are good.
Thanks, and sorry Penelope if this does not help to answer your question. (Personally, from what I know, I think your doctor's recommendations are very good.)
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
janet/FL is offline   Reply With Quote
Old 11-17-2007, 11:26 AM   #4
penelope
Senior Member
 
Join Date: Jun 2006
Posts: 153
thanks for the input.
Any other thoughts, Lani? RB?
__________________

penelope is offline   Reply With Quote
Old 11-17-2007, 12:06 PM   #5
R.B.
Senior Member
 
Join Date: Mar 2006
Posts: 1,843
Penelope,

I am a lay person and not an expert, and my subject is omega six and three. Please discuss dietary change with your doctor.

Please see the greek diet and cox 2 posts, which contain the some information as to why.


http://her2support.org/vbulletin/sho...ght=greek+diet

http://her2support.org/vbulletin/sho...ght=greek+diet

It is ESSENTIAL to balance the omega threes and sixes which means cutting down on omega sixes, the highest sources of which are vegetable oils (excluding Virgin oil, flax and a little coconut and a few other exceptions - see nutrition data)

http://www.nutritiondata.com/topics/fatty-acids

There is a range of opinions on how much long chain omega three, but many sites making medical recommendations suggest between 1 gram of DHA, to 2.7 grams DHA plus EPA. A trial suggested that uptake of DHA in women drops off at about 2 grams a day. Smaller amounts will help but my personal preference is for the higher end rather than say 200 mg a day.

It is also important to get some mother omega three found in vegetable sources of which flax is a high omega three source. You will have to read the posts and decide if you prefer flaxseed or oil. There is evidence flaxseed is beneficial but it is a topic of debate as some have concerns.

But as above do talk to your doctor as fish oil can case blood thinning etc.
R.B. is offline   Reply With Quote
Old 11-17-2007, 02:17 PM   #6
ckeesling
Member
 
Join Date: Aug 2007
Location: Native Californian
Posts: 21
Dr. Andrew Weil swears by mushrooms for medicinal purposes, the milk thistle for liver, not sure about the others. My onc is very uneasy with taking anything, including green tea,that could increase the hormone levels. I wasn't even ER/PR pos and had an adrenalectomy in Sept, I've had a complete hysterectomy and he still doesn't want me to use anything that has anything to do with hormones.

Let us know how you feel after trying it!
Good luck
Cat
__________________
11/06 DX Invasive ductal carcinoma, right breast
Stage 1 T1c, NO,MX
1.1 cm
Grade 3
Lumpectomy with additional removal for clearer margins.
ER-,Her2+ strongly positive
Mammosite Radiation (Felt very lucky to have this)
6 rounds every three weeks of Taxotere,Carbo and Herceptin
Will continue with Herceptin until Jan this year...
ckeesling is offline   Reply With Quote
Old 11-17-2007, 04:26 PM   #7
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Hi

I take Reishi mushroom extract. These are highly indicated by TCM in our case. At the time I started to take them I looked up at research info on them and I remembered that they were really given excellent back up, consequently I take them every day. Have not kept track of what I read but this article is a good start:
http://en.wikipedia.org/wiki/Lingzhi

Alos I found that they had a nice mood enhancing feeling IMO
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
fullofbeans is offline   Reply With Quote
Old 11-17-2007, 07:12 PM   #8
CLTann
Senior Member
 
Join Date: Oct 2005
Posts: 476
I take Reishi mushroom (or Ling tze in Chinese) everyday. I know many friends who are also on this mushroom pills, and they are doing very well against different cancers. I also take flaxseed, freshly ground, with my cereal. Another herb I take is curcumin. For bone protection, I take once a week Fromax. In addition, I am on Femara as described below my signature. I also started vitamin D, 2000 mg dosage. I figure these items cannot hurt me. For cooking, I use olive oil and canola oil.

Hope the above helps.
__________________
Ann

Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
CLTann is offline   Reply With Quote
Old 11-17-2007, 07:22 PM   #9
jhandley
Senior Member
 
jhandley's Avatar
 
Join Date: Sep 2005
Location: Melbourne Victoria Australia
Posts: 330
Smile sounds good

Hi
I take most of what you are on. partic. the q10, fish and flax oil AND I AM RELIGIOUS ABOUT FLAXSEED MEAL 25 G A DAY IN A MUFFIN. REMEMBER THECANADIAN STUDY WHICH FOUND THAT FOR ALL TYPES OF bc 31 % REDUCTION IN GROWTH, 34 % TUMOUR DEATH AND FOR HER 2+ 70% HER 2 RECEPTORS KNOCKED OUT.
I also take olive leaf extract.

cheers
Jackie (down under)

Last edited by jhandley; 11-17-2007 at 07:24 PM.. Reason: TYPO
jhandley is offline   Reply With Quote
Old 11-17-2007, 09:48 PM   #10
penelope
Senior Member
 
Join Date: Jun 2006
Posts: 153
anyone have the recipe

for flax seed muffins?
__________________

penelope is offline   Reply With Quote
Old 11-18-2007, 12:28 AM   #11
jhandley
Senior Member
 
jhandley's Avatar
 
Join Date: Sep 2005
Location: Melbourne Victoria Australia
Posts: 330
recipe

Just replace 60 % of the flour in a recipe with flaxseed meal.
jhandley is offline   Reply With Quote
Old 11-18-2007, 03:12 PM   #12
Mgarr
Senior Member
 
Mgarr's Avatar
 
Join Date: Dec 2005
Location: Michigan
Posts: 230
Images: 2
http://www.cancerrd.com/recipes/bana...x_muffins1.htm

This recipe is excellent.

Mary
__________________
Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

Mgarr is offline   Reply With Quote
Old 11-22-2007, 04:44 PM   #13
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Hi Jhandley,

The % you quote sounds impressive for lax seeds would you have the ref please? Thanks
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
fullofbeans is offline   Reply With Quote
Old 01-15-2008, 03:58 PM   #14
R.B.
Senior Member
 
Join Date: Mar 2006
Posts: 1,843
Hi,

I hope this helps. Please discuss diet with your doctor.

If you search the board for Flax and flaxseed you will find some posts that look at the pluses and minuses of flax seed and oil.

This was a response I got from a researcher into the subject - but it is one of debate. (Some flaxoil may contain some lignans I read somewhere else - vague recollection)

"There seems to be a lot of confusion on the website below. I will
attempt to answer some of the questions posted on this site: firstly,
flax oil does not contain any lignans as they do not dissolve in oil.
Lignans are present in every plant food that we eat only more
concentrated in flax and therefore commercially more viable to extract.
There is products available on the market that do deliver specific
quantities of flax lignans.

Lignans are phytoestrogens but they are very weak and only elicit a
very weak estrogenic response. The current research suggests that the
advantage of this is the body detects them as estrogens (which produce a
strong estrogenic response) and therefore produces less harmful
estrogens (homoeostatic process) though inhibition of the aromatase
enzymes, more SHBG to bind estrogens (for elimination from the body) and
increases the conversion of estrogens to the 2OHE metabolism pathway
over the 16OHE (by increasing CYP1A1 enzymes). This whole process has a
cyclic effect with the end result being less bioavailable estrogen
(harmful), increased 2OHE (protective), and decreased 16OHE (harmful)."
R.B. is offline   Reply With Quote
Old 01-15-2008, 04:26 PM   #15
hutchibk
Senior Member
 
hutchibk's Avatar
 
Join Date: Oct 2005
Posts: 3,519
I would only like to ask/offer - are you currently in/on any kind of pharmaceutical cancer treatment? If so, please follow due diligence to be certain that nothing you are taking will interfere with the actions/efficacy/pathways of your treatments, as many herbs/foods/supplements can have negative or neutralizing effect on treatments.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
hutchibk is offline   Reply With Quote
Old 01-15-2008, 06:13 PM   #16
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
I like to sprinkle ground flax seed, wheat germ and blueberries on my yogurt. Also, you can increase Omega-3 in your diet by switching from "ordinary" eggs to "Eggland's Best" or another brand higher in O-3's. Eat more fresh-caught salmon, and cold-water fish like cod or haddock. Also, I use "Smart-Balance" products, maybe someone can tell me if that one is all it's cracked up to be, but it makes sense to me. Good Luck and God bless you all,, Love, Bill
Bill is offline   Reply With Quote
Old 01-15-2008, 06:38 PM   #17
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
At the New Year's Eve Party I went to everyone asked what are the most healthy things you can do (I suppose so they could adopt those things the next morning)!

I believe, believe, believe in Omega 3 fatty acids. I ranked the healthy things as such - exercise (walk 5 hrs a week/one hr 5X a week - you can do more but this is easy for just about anyone), next is to eat 5-9 servings of veggies and fruits, 3-6 g of fish oil per day (adjust if you are eating a big hunk of salmon that day or having flax pancakes with walnuts), switch all oil to extra virgin olive oil and canola (for high heat cooking or baking), take 1000iu of D3 per day (adjust to more or less depending on where you live and the time of year - if you can get natural sunshine, that's a great thing) and have good quality whole grains/beans.

These things naturally help you cut down on large portions of red meat. Watch the white carbs and switch to whole grain pasta, sweet potato or yams, and brown rice. Use wasa and other whole grain foods. Read the labels and don't use foods with chemicals - not even marinades (and chemicals are my livehood).

I also believe in CoQ 10 because it promotes mitochondrial health and supports mRNA functions (plus its a great antioxidant and you can't get enough via food unless all you eat is red meat). And an aspirin a day to regulate Cox 2 as safely as one can.

But of all supplements, Omega 3 fatty acids is it. I believe this. As a biochemist with an advanced degree - it fits every possible scenario (even for women with only high ER/PR+ and not Her2 as the cholestrol pathway (see where exercise comes in) is a precursor to prostagladins, estrogen, etc. If you could see the cascades, you would see that this works - or at least it starts to shift things in your favor.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 01-15-2008, 06:54 PM   #18
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Wow, awesome Becky, I forgot to add my daily intake of almonds and walnuts, I got alot of info. from the Superfoods books by Steven Pratt and Kathy Mathews. Love to you all,,Bill
Bill is offline   Reply With Quote
Old 01-15-2008, 07:39 PM   #19
penelope
Senior Member
 
Join Date: Jun 2006
Posts: 153
So Becky are you a biochemist? I was not sure from reading your post. Seems like I should know this.

Do you have any recommendations for taking fish or flax oil? It seems to give my liver a hard time.

Also do you know anything about the mitotic index of a tumor specifically what type of prognositc value it carries?
__________________

penelope is offline   Reply With Quote
Old 01-15-2008, 07:43 PM   #20
MCS
Senior Member
 
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
Becky

You're great. like always

I was starting to look into taking some pill with omega 3s since I only eat fish twice a week. I hardly eat red meat.
MCS is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 05:19 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter