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10-28-2007, 11:08 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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i need help
hi, i can hardly think straight enough to post this but here goes...On oct 3 I had treatment herceptin/vinorelbine..during treatment my shoulder hurt really bad...they sent me down for fluroscope(sp) and there was a crack in the line...my shoulder and neck hurt alot!!! anyway a week later they took the port out and didn't put a new one in because there was concern of infection...Well this past wed. I had treatment after a new port was put in in the am...they didn't close it up at all no stitches or staples just steri strips well I bled those off in no time..Thursdsay I felt pretty good..Friday and all weekend I have been achy in the shoulder, head, neck & hips..I also had a fever of 102 it has come down my hand on the port side is full of pins & needles and I know this is going to sound weird but my remaining breast feels full at times...I don't know what to make of all this..I also have no appetite to speak of. My poor husband has had to do everything this weekend...4 kids and we also have 9 4 week old pups...what a zoo around here...I don't know what I am asking I guess some insight would be good. Thank you.
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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10-29-2007, 12:07 AM
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#2
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Tammy, I think you should be asking those questions of your medical team. ASAP. Can you go to an emergency room or immediate care clinic? Have you talked to your treatment facility? The fever suggests to me that there may be an infection.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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10-29-2007, 03:30 AM
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#3
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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Fever is a bad sign. I had a staph infection in my port and felt so sick I couldn't believe it. Get to the Dr. and insist that they test for infection. I had to fight to get treated properly too. It is very important for your well being!
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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10-29-2007, 08:35 AM
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#4
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I have to go straight to the hospital if I have a fever over 101. Sounds like an infection to me...I would call the doctor if I were you or go right to the hospital. Don't feel quilty about the kids and your hubby. They are his kids too. Take care of your self now so that you can take care of them later!!! I have had infections in the port and catheter and had to have them removed. I've also had to take IV antibiotics/anti-fungal meds to get rid of the infection. Please take care of this now. It is really not something to fool around with!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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10-29-2007, 09:38 AM
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#5
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Tammy,
How are you doing today? Please get to the doctor as others have suggested even if you feel better. Tell them your symptoms and don't sugar coat it. You will regain your strength soon but you must get this straightened out first.
Carolyn
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10-29-2007, 11:09 AM
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#6
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Senior Member
Join Date: Sep 2005
Posts: 556
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Hi Tammy,
My first Navelbine infusion is on my arm vein becuase I didn't have port that time. I got a fever of more than 102 and hand was swollen. My arm hurt alot as you said like oins and needles. I suffeered for a week like that with pain medication.It want away after that.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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10-30-2007, 09:18 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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an update..
Well I went to my GP yesterday and she sent a culture of the open wound off to the lab..but my arm and shoulder and even my chest was feeling super tight, so I went in the the big wig hospital where I get chemo and I have a HUGE blood clot from where the port is to my shoulder!!! The doctor knew right away by the color of my arm that there was probably a clot..anyway know I have to give myself shots in the stomach for 6 mos!! to break this clot up...I am also on antibiotics for the possible infection going on...and did I ever get an earful for not coming to the hospital sooner!!!!!!!!!!I am really hoping I feel better soon, typing this has about took all my energy...unreal how easily tired I am getting...I am used to pushing myself all the time to get things done...I 'm sure most of us are like that, today I tried to vacuum and only got 1/3 down and sweat was dripping by the buckets and I could do NO MORE..NOTHING!! It was very unsettling!!!!!!!!! Thank you all again for listening and for your support.
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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10-30-2007, 09:29 PM
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#8
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Tammy, I am so glad to hear from you. I was worried about you. I am so relieved that you saw the doctors and began treatment.
No matter how difficult it is, you need to conserve your energy and put down that vacuum cleaner RIGHT NOW!! Just STOP THAT!!!! Sometimes we just have to surrender to the fatigue and this is one of those times. You need to heal. Save your energy for the most pressing things. God bless. Keep in touch. And keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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10-31-2007, 05:38 AM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Tammy
Please take it easy and try to give your body time to heal...a blood clot is nothing to mess with...use caution with that arm! It takes time to dissolve so it takes time for you to heal....take the time....saying a prayer for you.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-31-2007, 10:21 PM
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#10
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Tammy, how are you doing? Hope you have been able to take it a bit slower. Keep us posted.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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