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Old 08-03-2007, 04:44 PM   #1
Cheryl44
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Join Date: Mar 2007
Posts: 19
Belinda From Australia, are you out there?
Belinda:

I just read your post back in January and wondered if you are still looking at this board. We were diagnosed around the same time and I just wondered about how you are doing.

Cheryl
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Cheryl Hamilton
DX 2/6/07
LB Mastectomy 2/12/07
3 out of 9 Lymph nodes +
4 AC DD completed
12 Weekly Taxol/Herceptin completed 7/07
Herceptin completed 5/08
33 radiations completed 9/07
Tissue expander placed 7/08
Tram Flap scheduled 12/15/08
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Old 08-04-2007, 01:58 AM   #2
Belinda
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Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
Hi Cheryl!
Yep - still here - And...I FINISHED TAXOL YESTERDAY!!!!!!!!!!!!!!!! YAAAAYYYYY! Had bubbles (lemonade! LOL) and got floweres from DD and DH last night - still trying to accept it is all over. I think if my hair all just sprang back I would feel like it really was over - but I still see sick me every time I look in the mirror so I guess it will take a while. Still on Herceptin for 9 months (I am grateful for that) - first triple dose next week. Then start rads - 25 of them - on 27 August.

Cheryl - how are you going? Are you travelling well? I see you finished taxol a couple of weeks back - good for you. Any hair yet?

Belindaxxx
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Belinda
  • Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
  • Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
  • May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
    Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
  • March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
  • Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
  • January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
  • Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
  • Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
  • ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
  • Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
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Old 08-04-2007, 08:17 AM   #3
Cheryl44
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Join Date: Mar 2007
Posts: 19
Hi Belinda
Yes, in fact I just got back from the Mountains with my family. We even went white water rafting! That was fun.

I started rads last Mon. (I get 33 of them) My feet and hands sometimes get tingly and my hair is growing back! Not the right color though, I will have to change that when it comes in fully enough to be colored.

I am so excited for you to be done with Taxol! Yippee, Yahoo!

I want to share with you that I got emotional a few times in the last few weeks at radiation of all things. I don't know if I was holding it all in during chemo just to get through it or what, but I found myself crying on the table and that surprised me. Just a heads up on that, of course that may not be an issue for you.

Anyway, I noticed your diagnosis, size of tumors, nodes etc. and could relate. I take Herceptin myself until next May.

The hair will come in soon! When it starts, is starts growing pretty fast.

Talk to you soon.

Cheryl
__________________
Cheryl Hamilton
DX 2/6/07
LB Mastectomy 2/12/07
3 out of 9 Lymph nodes +
4 AC DD completed
12 Weekly Taxol/Herceptin completed 7/07
Herceptin completed 5/08
33 radiations completed 9/07
Tissue expander placed 7/08
Tram Flap scheduled 12/15/08
Cheryl44 is offline   Reply With Quote
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