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Old 03-28-2007, 03:29 AM   #1
lindaw
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Join Date: Sep 2005
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bit worried

Had my ct scan yesterday and asked for an appointmnet today as my neck swelling is worrying me and making it hard to turn from side to side. Soem is post rad tightness on my chest.
CT scan showed the swelling in the tissue but not sure if mets or not. Onc seems to think this is unusual and they will relook at scan next Tuesday when they have interdisciplinary meeting.
Spose definate laspatinib has stopped - though tit would be more effective than it has. A shame.
Feeling scared and low.

love
Linda
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Old 03-28-2007, 03:35 AM   #2
Mary Anne in TX
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Location: San Antonio, TX
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Hi Linda! Sometimes this stuff is truly the pits, isn't it! I'm dealing with so much pain in my right arm and neck where I had rads a few weeks ago. I see both the rad onc. and the onc on Thursday and Friday so I know I'll get some answers. But I know you must be worried because this new stuff works on our brains doesn't it. I've just tried to stay busy and do lots of little walks. Seems to clear my mind for a while. I'm so sorry you have this stuff. Surely do hope you get some answers quickly and that they are all GOOD! Thinking great thoughts for you today! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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