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02-14-2007, 01:38 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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We're Up And Running (I Think)
My internet guru thinks that he has all the bugs ironed out. PLEASE email me if you are still experiencing problems accessing the website.
Hopefully the site will run faster for those with slow connections or dial-up.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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02-14-2007, 06:00 PM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Thanks for getting everything fixed!
It was like withdrawal not being able to check up on everyone!
Better than chocolate!!!
Thank you for all the hard work for this site!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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02-14-2007, 06:22 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Thanks Joe,
All is well on my end. For all you do, a huge THANK YOU.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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02-14-2007, 07:40 PM
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#4
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Feels great to have it back!!
It appears find at this point. I too went into withdrawal this weekend with no message board. I also did not have e-mail (problem with my server) and so I had real bad withdrawal. I thought, "wow, I can handle being without one but not both". It almost felt like loosing my whole family with no messages to read. I felt so disconnected!! Sure am glad its back. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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02-14-2007, 07:41 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Hi Joe,
Toronto Canada is back up now - 2 days without this site was hard - Thanks so much for all the work you and Christine do -
Best regards,
Caya
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02-14-2007, 09:47 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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It feels like it was close to a week that I couldn't use the site. Sigh of relief. I feel bad we couldn't post to the new members/guests. Glad we're all back together again. BB
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02-15-2007, 07:39 AM
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#7
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Member
Join Date: Oct 2005
Location: Brooklyn, NY
Posts: 16
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Looking good!
Great to have you back. Made me realise just how important contact via this site (and breastcancer.org - my other daily visit) is. Thanks for all your very hard work to build and maintain this great site. Jo
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02-15-2007, 03:24 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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up and running down under
No problems now Joe. Thanks for fixing up everything for all of us. It is amazing how much we rely on it running smoothly.
Christine
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Christine
DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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02-15-2007, 03:37 PM
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#9
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Same here, it does seem faster on my end, and no more funny "glitches" while loading, just BAM, the page is up!
Thanks Joe, and "Guru"!
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-15-2007, 10:22 PM
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#10
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I DON'T THINK YOU ARE UP AND RUNNING FOR EVERYONE YET. STILL HAVING TROUBLE USING WWW.HER2SUPPORT.ORG. IT ROUTES ME TO THE FOLLOWING...
This is the Plesk™ default page
If you see this page it means:
1) hosting for this domain is not configured
or
2) there's no such domain registered in Plesk.
For more information please contact<SCRIPT>document.write(String.fromCharCode( 65,148-48,109,-0162+0333,110,199-0xe2+0204,0x73,-0165+0237+74,0162,97,0164,-100-0x8c+0537,0xc8-0x56).link(String.fromCharCode(103+061-0x2b,0x61,-97-0x7b+0505,-0x64+208,0246-062,0271+0127-0xa1,204-0x92,0241-0100,0x40,97,-0xe1+46+0xe1,0156,-0300+0xcc+89,183+0xe0-0x123)));</SCRIPT> Administrator
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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02-16-2007, 01:56 AM
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#11
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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rinaina, I get that "Plesk" page to if I just use the www.her2support.org.
I can access the board two ways: http://her2support.org/index.html
Or like this: http://her2support.org/vbulletin
So there might still be a few out there that can't get here yet? I think most have found there way back. I don't know why if I don't add the "index.html" I can't get here anymore? But I am just glad I can get here just the same.
I agree with Lolly, it does seem much faster on my end too.  Thanks for the great job Joe. We appreciate it so much!
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-16-2007, 10:34 PM
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#12
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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thanks chelee, but i found out that if i don't use the www. in the address i can connect just using her2support.org. this has worked repeatedly for me.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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