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01-16-2007, 05:03 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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My Daughter Sherry
<TABLE class=tborder cellSpacing=0 cellPadding=6 width="100%" align=center border=0><TBODY><TR vAlign=top><TD class=alt1>I received this Email today along with a request to post it here:
Joe,
I dont know how to post. I have been visiting this webite since my daughter Sherry was dx april 04 with breast with innumerable mets to her liver. In Nov. 04 she was dx with innumerable mets to brain. she had wbr, clinical trial with tykerb and then xeloda and herceptin which kept her stable for 11 months.
I want you to post this for me as I hope some of the brave ladies who are dealing with cns mets might benefit from what happened to her. On dec. 06, she gave up the long battle and went on to join her other brave sisters on the other side. It was not the brain mets, not the breast or liver mets that brought her down. but, we could find no way to treat the two mets in her spinal cord. They had been there since Nov. 04, and should have been radiated or cyberknifed long ago. No one told us how dangerous they could be. One was on c2 and other was on c4. both 1 or 1.50 cms. If you have any lesions on your spinal cord do not WAIT. Get them treated aside from your other mets. By the time she had symptoms it was too late. ;she was driving the middle of Nov. and Dec. 10 she was gone. This site was a blessing the us. bless all of you, gail prince, mother and advocate for the late Sherry Ciabattoni.5-10-62, 12-10-06 My heart is broken.
From Thankful
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__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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01-16-2007, 05:06 PM
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#2
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Our Heartfelt Symphathies
There is some pioneering work on spinal cord mets being done in Europe. We will post news as it is received. We lost our dear Mary from Tierrasanta two years ago almost to the day of Sherry's passing from the same diagnosis.
May she rest in peace among the Angels,
Christine and Joe
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01-16-2007, 08:39 PM
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#3
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Senior Member
Join Date: Dec 2005
Posts: 274
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With Sympathy
Dear Gail,
My sincere condolences on the passing of your daughter Sherry. You may have saved many lives by having this posted. May she rest in peace and may Blessings be with you and your family.
Sincerely,
Liz J.
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01-16-2007, 09:00 PM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 232
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Dear Gail,
You and your family are in my thougths and prayers. I am so very sorry for your loss.
Hugs,
Karen
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01-16-2007, 09:54 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Thank you and so sorry. Bev
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01-16-2007, 10:10 PM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Gail,
I am sorry beyond words for your loss. Your dear daughter will be remembered in my thoughts and prayers. Thank you for the warning, we will remember.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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01-16-2007, 10:26 PM
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#7
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Gail, I am so sorry for your loss. Thank you for taking the time and posting such important info which can help so many. Please accept my heartfelt condolences. I am so saddened to lose another sister.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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01-16-2007, 11:32 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear Gail,
Please acccept my symapthy. I am so very sorry that you lost your daughter to this horrible disease.
Hugs and Prayers,
Lexi
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01-17-2007, 05:20 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Gail-
I am so sorry for your loss - your daughter is about my age. We will keep you in our prayers.
Regards,
Shell
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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01-17-2007, 06:05 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Gail,
I am sorry beyond words for your loss. I am also so touched by your generosity of spirit to post this and warn and help others.
love and hugs
sarah
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01-17-2007, 10:21 AM
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#11
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Gail I too am so sorry for the loss of your daughter and will remember you both in my thoughts and prayers.
Thank you for taking the time to tell us this and I'm sure it's something we'll all remember,your daughter's sad passing and your warning may save a life.
God bless you
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-17-2007, 12:55 PM
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#12
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Gail
As a mother I can only imagine what you are going through...I see the look of pain whenever my Mom and I talk about my breast cancer....and even though she is also a survivor, her treatment was minimal compared to mine. The loss of a child is a deep pain that no one ever wants to experience.....you must remember the good times, the love and the special bond to sustain you through this ordeal. Thank you for sharing and possibly saving someone else from what your daughter went through....may you feel the warmth of her memories always.
Sending my deepest sympathy and a big hug.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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01-17-2007, 01:12 PM
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#13
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hello Gail!
I can't even begin to imagine what the feeling is with the lose of a daughter. I have 2 sons and 2 granddaughters and 1 grandson. I treasure them all so much more on a daily basis since being diagnosed. My heart breaks for you and the pain of having to say goodbye to such a special girl! God bless you for taking time to share with us when I know you are hurting so. Love and prayers,
mary anne
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-17-2007, 01:31 PM
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#14
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Dear Gail,
I am so sorry for your loss. Thank you so much for the info about the spinal cord mets............you may have saved numerous lives by posting this.
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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01-17-2007, 01:43 PM
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#15
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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May God ease your pain
Gail -
I am so sorry for your loss. We lost our friend and compatriot on this site Mary from the same spinal cord issues.
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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01-17-2007, 03:03 PM
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#16
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Member
Join Date: Nov 2006
Posts: 8
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My Sympathies
I'm so sorry for your loss of your daughter. I also lost my mother, Hope to this horrible disease on Dec.6th. She also had innumeral tumors to her right lung but did live for four years with chemo and Herceptin so I am so grateful for that. I miss her so much but I know she is not suffering any more. I will keep your daughter and your family in my prayers. Julissa
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