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Old 10-27-2006, 03:05 AM   #1
lindaw
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lapatinib journey

Hi

My scans were clear. Still have a little skin mets on my chest after the radiation.Ihave started the lapatinib process- fairly new in Australia. the forms have been sent off and I have the consent forms to sign- should be about 2 weeks . I am so hoping it will work - its been so long ( 4 years of continual chemo and 1 year of open skin mets on my chest.)

love
linda
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Old 10-27-2006, 03:13 AM   #2
chrislmelb
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Good luck with everything Linda. It does take time and lots of frustrations.

Christine
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Old 10-27-2006, 05:54 PM   #3
Vanessa
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Hi Linda,

I am glad to hear that your scans were clear. I know it was hard to wait for the news. You have been really strong to be going through chemo for 4 years. I hope you new treatment goes well! Best wishes.
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Old 10-28-2006, 09:15 AM   #4
Sandy H
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Hi Linda: I am happy to hear you will soon get the Tykerb. Are you taking it with Xeloda? Its either Xeloda or Herceptin until it is released then it has to be given with one of these. I had to use Xeloda. I can tell you for me it worked very fast! I knew within the first cycle of two weeks it was working. I hope this is encouraging for you. I wish the same for you! hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 10-31-2006, 10:22 AM   #5
peytons mom
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How did you know?

Dear Sandy,

How did you know the xeloda and tykerb were working? How
long did you take it? What were the side effects? I'm taking xeloda right now and waiting to hear if I can be on tykerb/xeloda study.

Melissa
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Old 10-31-2006, 11:38 AM   #6
sarah
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good news about the scans. hope the tyberb works out well and no side effects - it sounds like a miracle drug.
sarah
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