What a great group!
This week I received a private message from Rhonda (Sassy)... she had noticed that I hadn't posted in awhile and she wanted to know if I was OK. That is one of the truly amazing things about this group. In some ways I don't feel worthy--I am not here often enough to notice when people haven't posted, and even if I was, I don't know if I would have the organizational thinking skills to notice someone's absence. Rhonda--thank you for checking in with me. Part of my problem has been lack of time due to learning a new industry since I changed jobs on March 31. My other problem was that I have struggled the last couple times I visited. Lyn's death, Linda's death, and the huge struggles that everyone is facing were tough on me, as I am sure they were on all of us.
But Rhonda's message was a reminder about the outstanding nature of this board and the people who contribute to it. It's not a board where people spend too much time on chit-chat or useless info (although we get to know each other quite well anyway); it's one where we exchange information about trials, treatments, symptoms, etc. -- VERY useful stuff. My treatment course was radically different because of this site (and my oncologist's willingness to allow me to recommend my own treatments).
I know that I need to be on this board and stop being a baby (although I know where to go when I need a good cry :-). I have ideas and experiences that I should be contributing for the benefit of others, just as I have received information that helped me. And I still need to stay on top of everything for my own sake. With a stage 3b case, I was so close to stage 4, that my journey probably isn't finished.
So I am still here--sometimes lurking, sometimes posting when I have time. Thank you Rhonda, and thank you to the rest of you too!
Gotta go...more posting to do!!!
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BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
Last edited by Val Pfeiffer; 08-06-2006 at 06:09 PM..
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