 |
05-24-2006, 05:30 PM
|
#1
|
|
Member
Join Date: Mar 2006
Posts: 8
|
My Great News!!!
I don't post much but I do read all the posts from everyone else. I did want to post my good news. I was diagnosed in 10/2003 with stage II. I am on the clinical trial with UCLA in CA. I was on the control arm, so I did not receive the Herceptin drug. My oncologist said at this late stage it probably would not be of any benefit. That a study was not done on someone who had chemo 1.5 years ago. He stated that if my cancer came back I would get Herceptin immediately. Long story short: I had been having hip pain since Oct 2005. It had gotten so bad that I can't sleep at night. I had xray, bone scan and last week a MRI. They all came back negative. My CA27.29 has been steadily going up. In August it was 32 and May it is 44.3. I have it drawn every three month. The Orthopedic guy I saw stated that even though my MRI is normal I may have mets elsewhere in my body because of my elevated markers. He has treated my for bursitis this afternoon with cortisone injections. I am just so happy not to have bone mets at this time. Thank you all for your help in researching everything there is on Herceptin and HER2neu. I can come to one site and know that the info is realiable.
|
|
|
|
05-24-2006, 05:46 PM
|
#2
|
|
Senior Member
Join Date: May 2006
Location: Cleveland, Ohio
Posts: 65
|
I am glad that you had good news! Take time to cherish the moment!
__________________
Caregiver to mother, Diane
Diagnosed 3/2006 Stage IIB (T2, N2, M0), Her-2+++, Er/PR-, Grade 3
|
|
|
|
|
05-24-2006, 06:47 PM
|
#3
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Great news! I wish you a lifetime of NED!
Lexi
|
|
|
|
|
05-25-2006, 05:10 AM
|
#4
|
|
Senior Member
Join Date: Sep 2005
Location: Raleigh, NC
Posts: 148
|
Thank you for sharing your wonderful news and may you continue NED.
|
|
|
|
|
05-25-2006, 06:25 AM
|
#5
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
We all like to wallow in good news...good news for even 1 of us is hope for the rest. Enjoy your great report...may it last forever!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
05-25-2006, 06:49 AM
|
#6
|
|
Senior Member
Join Date: Mar 2006
Location: Minnesota
Posts: 32
|
Congratulations on your good news. It is always a relief when test results come back negative.
__________________
Ann
|
|
|
|
|
05-25-2006, 07:00 AM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
It is so nice to hear of your good news!
|
|
|
|
|
05-25-2006, 07:25 AM
|
#8
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Great news - gives all of us encouragement.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 06:29 AM.
|
Linear Mode
