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05-05-2006, 06:48 AM
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#1
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Senior Member
Join Date: Mar 2006
Posts: 306
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Maggie C... Brain mets...
Maggie,
Saw your post on your MRi results and am just so sorry you have this on top of your other issues.
I have had two lesions on my brain stem treated. One at a time a year apart, along with others simultaneously. I so hope you will find a good rad onc and center where you will get focalized treatment for your brain mets. You'll have enough other side effects to deal with when you go on your chemo schedule... without the added multiples from WBR.
Thinking of you, dear.......
hugs,
pattyz xoxo
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05-07-2006, 07:41 AM
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#2
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Senior Member
Join Date: Mar 2006
Posts: 306
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Maggie C,
Someone out here is thinking of you...
xoxo
pattyz
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05-08-2006, 12:52 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maggie
Just wanted you to know I am thinking of you and hope you have seen the radiation oncologist by now...there are many brain mets survivors on this board so feel free to ask anything...this is scary for anyone.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-08-2006, 01:37 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Maggie,
I am also a survivor of brain mets and am thinking of you. Be sure to come to this site with any questions you may have.
Barbara H.
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05-11-2006, 01:22 PM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 306
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News from Maggie C.
Here is part of email update from Maggie C:
".........Since my posting I have had 3 consults. First with the Kaiser radiation oncologist, second with another Kaiser medical oncologist (and my new oncologist now) and third with Dr. Glaspy, the breat cancer "brain" at UCLA.
Good news is that the 2 mets in the brain are only 4mm and 11mm. Dr. Glaspy indicated that the reason it makes since to radiate the whole brain is because there could very well be other non-scan visible cancer cells which radiation could zap. My neurological exam indicated I'm at nearly 100% functionality. BTW, Herceptin does not penetrate the brain but a to-be-release Herceptin like (but more powerful) oral med called Lapatanib does.
...The radiation oncologist, Dr. Rao said I should be able to drive to my appointments (about 25 miles) and work at home. So, that's the plan. My mom is coming down tomorrow from Reedley in Fresno county so I have someone to stay with me if the fatigue becomes too difficult. I've started on Decadron to prevent headache and fatigue which accommpanies the brain rads. Feeling like a little fireball now : ) "
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05-11-2006, 05:43 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Maggie C,
Thoughts and prayers for you! Let us know when you can how you are doing.
Hugs, Maggie
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05-11-2006, 07:21 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Maggie, is there any way that you can consult with Dr. Black at Cedars-Sinai? With lesions that small, I would really think hard about doing WBR.
Brain mets lesions from BC are showing very good results with SRS, with 50% of the people not needing any additional treatment for brain mets ever.
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05-11-2006, 11:02 PM
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#8
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Maggie,
I had an 8mm lesion last July that was successfully treated with Gamma Knife in August. It had grown to 11mm between the time we found it and when I actually had the procedure one month later. I asked about WBR and the doctor felt it was better just to keep doing regular MRIs because there was a good chance this might be the only tumor I get. Don't mean to confuse the issue, but it was my understanding that you could always save WBR for later if you developed mutltiples.
Maybe, you could get one more opinion?
Kim in CA
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05-12-2006, 04:30 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Maggie:
Your strength and determination amaze me. Truly amaze me. I am glad your mom is going to be with you. Now matter how old we get it is the best thing in the world to be able to have your mom with you! God bless - kim
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