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Old 03-11-2006, 07:57 AM   #1
Jwren
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Join Date: Mar 2006
Location: London, UK
Posts: 1
Is it in my rib or not?

Hello everyone,

This is a bit daunting! I've been reading the messages here for almost a year now and learning lots (so thank you all) but I need some help so I've had to 'bite the bullet' and actually post! hope that's ok.

Last year just a couple of months after diagnosis I had a bone scan which showed a small hot spot on my rib, it's round the back on the unaffected side kind of under my arm and used to be a bit sore, but no pain at night and so I was reassured that it was probably an old injury, the Doc even suggested it may have happened during surgery (because I said I'd never been injured there)

This year, 10 months later, I've had another bone scan that showed the spot still there but shrunk. I wasn't as reassured this time because surely it couldn't now be an old injury after all this time? Also since April I've been treated with chemo & am now on Herceptin so that's a good reason for it to shrink. I know that even if it is a met that I could go on for years yet as it's only a single one etc the Doc is still trying to reassure saying it could be arthritis (there?) or osteoperosis but has addmitted it'd be a weird place to get it and that it's not an injury after all this time, but the only way to know for sure is a biopsy which is too much for something so tiny and that I'm already having the best treatment anyway (which I agree with)

I've had a plain x-ray and a CT scan which showed nothing and he's going to do more scans before my year of Herceptin and I will be able to stay on it if nessessary. Just wondered if you all had any opinions about it all, I haven't mentioned any of this to the family because of all the uncertainty so I just needed to vent. Thank God (and I do) that I won my fight to get Herceptin, here in the UK, it hasn't been easy.

Sorry for rambling
Jen x
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Diagnosed 2005 age 36. IDC grade 3, 1 node, er & pr- HER2+++. Double Mastectomy, no recon, FEC chemo, radio and just having a year of Herceptin- Yay! ;-)
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Old 03-12-2006, 05:15 AM   #2
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Jen
I had a similar situation on my rib on the mastectomy side...the bone scan felt it was mets to the rib as it lit up like a hot spot. It took 6 mos to find out it was a healing fracture of the rib that occurred when I sneezed! The area was sore to the touch for a year! A RIB xray finally confirmed the diagnosis....even a chest xray didn't show it, You may want to try this.
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"Be kinder than necessary, for everyone you meet
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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