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Old 08-04-2008, 07:43 AM   #1
sally
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Acai berry

Just wondering if anyone is taking the acai berry in pill, juice or powder form. Sally
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Old 08-04-2008, 03:59 PM   #2
LAURIE
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I feel like it has the potential to be really good. my brother sells mona vie(sp?) I know sam's club sells a cheaper version. I have been drinking Bolthouse acai and/or tropicana acai mix.
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Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 08-05-2008, 08:12 AM   #3
kcherub
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I do Mona Vie.

Take care,
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Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA

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Old 08-05-2008, 12:56 PM   #4
Chelee
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My son just bought me a bottle of Mona vie. I haven't tried it yet but I checked out the ingredients and it looks to be a very healthy choice of drink. I hope I don't like it too much because its not cheap. We will see soon enough.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 08-06-2008, 05:38 AM   #5
naturaleigh
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Where do you find this drink? I have never heard of it. It does come in pill or powder form as well?
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er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 08-09-2008, 02:47 PM   #6
TerriC
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Unhappy No Mona Vie for me

A friend from work had a bottle of Mona Vie and I have been wanting to try it. After all, it was just berries with a little Glucosamine thrown in and I didn't think it would hurt. But I decided that I would behave(for once) and ask my onc first before using it. To my surprise he recommended against it for me right now. He said that he felt it could be a good preventative for cancer, in fact that if everyone ate 12 or so different Asian fruits and vegetables every day, no one would get cancer. But he thought that the Mova Vie has the potential to work against my therapy. Right now I am just receiving weekly Herceptin infusions.
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Old 08-09-2008, 04:21 PM   #7
BonnieR
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Terri, it was good you asked your doctor first. I think there are situations where seemingly harmless organic things that we would never suspect might actually be contraindicated in some cases.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-09-2008, 05:42 PM   #8
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Mona Vie

I have been drinking Mona Vie since November and my onc is fine with it.

Karen W.
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Old 08-10-2008, 06:17 AM   #9
TerriC
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Thanks Bonnie, while I was on chemo I never changed anything, but since Herceptin isn't a chemo drug I wouldn't have thought that a super juice would matter.
Karen, I'm glad that your onc is ok with it. Have you noticed any difference for you since you have started it? My friend that uses it says that his wife sleeps better and that it has taken away some of the "aging" pains that they had.
My onc didn't say that I could never take it, just that he didn't recommend it right now while I am receiving Herceptin. He said that he didn't know that much about Mona Vie, but that protocol advises against me changing or adding anything like that at this point.
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Old 08-10-2008, 06:29 AM   #10
Mary Jo
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Hello everyone,

I personally have not tried Mona Vie but a friend of mine drinks it religiously - like 1/2 cup daily. She, too, had breast cancer. She consulted with her onc. also (my friend is on Tamoxifen - no chemo) and the nurse said before she drank anymore of it she wanted to check into the ingredients further to make sure there was no "estrogen" related "things" in it. Anyway, after touching base with the nurse again AND her cancer nutritionist, she too was given the "go ahead" with it and both said it was a very healthy drink.

My 2 cents.....

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

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Old 08-10-2008, 05:27 PM   #11
karenann
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Hi Terri,

Yes, I have noticed a difference with my joints and... if you will, my peace of mind. I, too was a bit worried about the possibility of phytoestrogens (sp?) being in the mona vie (I am highly er+) but I have a friend who has researched for me and my onc is familiar with the product and both said, "no" to the phytoestrogens.

My husband takes it and we are trying to get our 15 year old daughter to try it, too.

Hope this helps.

Karen
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Old 08-10-2008, 06:22 PM   #12
lizm100
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Hi all-

yes, I do the Acai berry with blueberry 4 oz, pomegranate 4oz, carrot 4oz, mangosteen 2oz everyday. I buy all my juices except the mangosteen at Costco. The Zango, mangosteen I buy at a local health food store. I drink these juices under the advice of my naturalpath who said that if I were to only do a few of the juices she definitely wanted me to do the Acai & pomegranate.
Just my input.
Liz
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Old 08-11-2008, 05:54 PM   #13
TerriC
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Thanks Karen, maybe when I am done with the Herceptin, he will clear it.
Take care,
Terri
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Found lump 3/07 at age 44
Surgery: 7/07 rt-MRM, lt-Simple Mast. w/ immediate implants using Alloderm
Tumor: 3 cm., grad III, poorly diff., Stage IIA, IDC, ER/PR-, HER2+++(FISH 3.2) 0/14 nodes
Chemo 8/07-3/08 AC x 6 DD, Taxotere x 12
Herceptin 3/08 weekly for 1 year-done 2/17/09!!!!
Brca 2 +, complete hyst 6/15/2009
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