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03-27-2006, 03:37 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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5 year survivor today
Hi everyone
It is 5 years today since I found my first lump...second was in August last year. I am currently in remission but lately have had a twitchy left eye lid and also a couple of heat sensations in my left heel..anyone else had these symptoms?
Regards
Jackie
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03-27-2006, 03:49 AM
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#2
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Senior Member
Join Date: Oct 2005
Location: Sydney Australia
Posts: 105
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Congratulations Jackie. i have been on Herceptin 15 months now, and found that my eye twitched a lot for the first 6-9 months, but seems to have got better now.
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03-27-2006, 07:16 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Raleigh, NC
Posts: 148
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Yay, Jackie!! Now to add many more years NED to that 5.
I have the eye twitch as well on Herceptin only. Other muscles will go on a twitching rampage at times too. I can't address the heel heat since my hot flashes burn me from one end to the other!
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03-27-2006, 10:35 AM
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#4
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Jackie,
Big Congratulations on 5 years!
God Bless!
Jean
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03-27-2006, 12:16 PM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Jackie
WAY TO GO...AND KEEP ON GOING!!!!!!!!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-27-2006, 12:27 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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That's an important milestone, Jackie! Congratulations, and keep on expecting the best! Hugs, Tricia
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03-27-2006, 01:07 PM
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#7
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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Hi Jackie,
First of all, congratulations on a big milestone! I love to hear about women like you. You go girl!!
I just finished 6 months of chemo in combo with herceptin. I was getting herceptin weekly. Just got my first 3 week dose of herceptin on Tuesday and my eye is twitching like mad. (Of course, I think it's a brain met!!). I can live with it, but it's annoying. I'm just glad to hear it's not only me. I will mention it to my onc tomorrow. Never read about "eye twitches" in any of the side effect literature for herceptin.
Donna
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03-27-2006, 02:09 PM
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#8
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Congratulations on your anniversary!!!!
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
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03-27-2006, 02:22 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: Illinois
Posts: 327
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Wow how weird is that? I get the twitchy eyes (even to the point it's hard to read) and my right heel bothered me a lot. I kept telling the onc I wanted a brain MRI, he gave me one and nothing showed up.
Then I told him about the heel, and he said it was very unlikely that a tumor would be there even though I had a tumor in my right femur. Go figure? The heel still acts up, but since I bought a cushion for my heel, it's been much better.
That's just weird how we both have those 2 complaints. I think I'm going to blame it on the Herceptin.
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03-27-2006, 04:48 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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Great news Jackie.
I also get the odd eye twitch.
I sent you a reply ages ago. Did you ever get it? I have mucked up private messages before!
Christine
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03-27-2006, 05:25 PM
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#11
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Congratulations Jackie, your membership in the long-term survivors club is now official 
I have eye twitches off and on also.
<3 Lolly |
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03-27-2006, 06:58 PM
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#12
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Senior Member
Join Date: Mar 2006
Posts: 78
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Hi Jackie,
Your 5-year anniversary is very encouraging for all of us! I just started having left eye twitches for the last few days after receiving my 4th Herceptin tx. I've been off chemo for over a year, so if it's drug related, it's probably the Herceptin. It doesn't last very long peri incident so not annoying yet.
G.Ann
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03-28-2006, 09:05 AM
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#13
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Congratulations on your milestone Jackie! Ditto for me on the eye twitches. Must be the Herceptin.
Love, Kim in CA
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03-29-2006, 02:21 AM
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#14
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Senior Member
Join Date: Jan 2006
Location: Victoria, Australia
Posts: 95
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Congratulations Jackie. Fantastic news. Hope you can go out and celebrate big. I have always had twitchy eyes, so I wouldn't be able to tell the difference on Herceptin!
I'm really pleased to see your post, as I hadn't seen any for awhile, and was hoping you were OK. Obviously you are better than OK.
Take care.
Love Lisa
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03-29-2006, 06:14 AM
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#15
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Congratulations on five years! Hope that you have many more!
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03-29-2006, 06:26 AM
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#16
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Congratulations to you Jackie! What wonderful, encouraging, news! Here's to another 5 years, plus. Maggie
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03-29-2006, 07:33 AM
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#17
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Senior Member
Join Date: Jan 2006
Posts: 58
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Congratulations on this anniversary!
I hope you have many. many more! You give us all hope!
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03-29-2006, 08:11 AM
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#18
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Senior Member
Join Date: Mar 2006
Location: Northern Va
Posts: 84
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Congratulations!
Eye twitching - I will throw a wrench in this one. After my last Taxotere treatment, two weeks ago, my right eye started twitching. I figured it was the build up of the taxotere. Just had my load dose of Herceptin yesterday, I will see if the twitching continues or not.
Congratulations!! again!! Here is for a long, long, happy life!
__________________
Cheryl
Stage II, Grade III, ER+/PR-, Her2 3.0 amplified, N 0/5, dx 9/05, 39 yrs
Right Mastectomy, immediate tram flap reconstruction
4 AC, 4 Taxotere finished 3/15/06
Currently on Herceptin and Tamoxifen
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04-19-2006, 02:31 AM
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#19
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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Congrats Jackie.h.
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04-19-2006, 03:37 AM
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#20
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Senior Member
Join Date: Sep 2005
Posts: 202
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Congrats Jackie! Your an inspiration to us all. thank you.
__________________
Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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