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-   -   5 year survivor today (https://her2support.org/vbulletin/showthread.php?t=23239)

jhandley 03-27-2006 03:37 AM

5 year survivor today
 
Hi everyone
It is 5 years today since I found my first lump...second was in August last year. I am currently in remission but lately have had a twitchy left eye lid and also a couple of heat sensations in my left heel..anyone else had these symptoms?

Regards
Jackie

Roz 03-27-2006 03:49 AM

Congratulations Jackie. i have been on Herceptin 15 months now, and found that my eye twitched a lot for the first 6-9 months, but seems to have got better now.

DeborahNC 03-27-2006 07:16 AM

Yay, Jackie!! Now to add many more years NED to that 5.

I have the eye twitch as well on Herceptin only. Other muscles will go on a twitching rampage at times too. I can't address the heel heat since my hot flashes burn me from one end to the other!

Jean 03-27-2006 10:35 AM

Jackie,

Big Congratulations on 5 years!
God Bless!

Jean

Sheila 03-27-2006 12:16 PM

Jackie
WAY TO GO...AND KEEP ON GOING!!!!!!!!!!!!!

TriciaK 03-27-2006 12:27 PM

That's an important milestone, Jackie! Congratulations, and keep on expecting the best! Hugs, Tricia

doh2pa 03-27-2006 01:07 PM

Hi Jackie,

First of all, congratulations on a big milestone! I love to hear about women like you. You go girl!!

I just finished 6 months of chemo in combo with herceptin. I was getting herceptin weekly. Just got my first 3 week dose of herceptin on Tuesday and my eye is twitching like mad. (Of course, I think it's a brain met!!). I can live with it, but it's annoying. I'm just glad to hear it's not only me. I will mention it to my onc tomorrow. Never read about "eye twitches" in any of the side effect literature for herceptin.

Donna

madubois63 03-27-2006 02:09 PM

Congratulations on your anniversary!!!!



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((¸¸.Maryann -:¦:-´´

julierene 03-27-2006 02:22 PM

Wow how weird is that? I get the twitchy eyes (even to the point it's hard to read) and my right heel bothered me a lot. I kept telling the onc I wanted a brain MRI, he gave me one and nothing showed up.

Then I told him about the heel, and he said it was very unlikely that a tumor would be there even though I had a tumor in my right femur. Go figure? The heel still acts up, but since I bought a cushion for my heel, it's been much better.

That's just weird how we both have those 2 complaints. I think I'm going to blame it on the Herceptin.

chrislmelb 03-27-2006 04:48 PM

Great news Jackie.
 
I also get the odd eye twitch.
I sent you a reply ages ago. Did you ever get it? I have mucked up private messages before!
Christine

Lolly 03-27-2006 05:25 PM

Congratulations Jackie, your membership in the long-term survivors club is now official :)
I have eye twitches off and on also.

<3 Lolly

G. Ann 03-27-2006 06:58 PM

Hi Jackie,

Your 5-year anniversary is very encouraging for all of us! I just started having left eye twitches for the last few days after receiving my 4th Herceptin tx. I've been off chemo for over a year, so if it's drug related, it's probably the Herceptin. It doesn't last very long peri incident so not annoying yet.
G.Ann

Kim in CA 03-28-2006 09:05 AM

Congratulations on your milestone Jackie! Ditto for me on the eye twitches. Must be the Herceptin.


Love, Kim in CA

lisahammo 03-29-2006 02:21 AM

Congratulations Jackie. Fantastic news. Hope you can go out and celebrate big. I have always had twitchy eyes, so I wouldn't be able to tell the difference on Herceptin!

I'm really pleased to see your post, as I hadn't seen any for awhile, and was hoping you were OK. Obviously you are better than OK.

Take care.

Love Lisa

juanita 03-29-2006 06:14 AM

Congratulations on five years! Hope that you have many more!

Maggie 03-29-2006 06:26 AM

Congratulations to you Jackie! What wonderful, encouraging, news! Here's to another 5 years, plus. Maggie

Lee 03-29-2006 07:33 AM

Congratulations on this anniversary!
 
I hope you have many. many more! You give us all hope!

cherylynnie 03-29-2006 08:11 AM

Congratulations!


Eye twitching - I will throw a wrench in this one. After my last Taxotere treatment, two weeks ago, my right eye started twitching. I figured it was the build up of the taxotere. Just had my load dose of Herceptin yesterday, I will see if the twitching continues or not.

Congratulations!! again!! Here is for a long, long, happy life!

jhandley 04-19-2006 02:31 AM

Congrats Jackie.h.

kristen 04-19-2006 03:37 AM

Congrats Jackie! Your an inspiration to us all. thank you.


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