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Old 06-21-2007, 08:34 AM   #1
Leslie's sister
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Location: So California
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Bone Density Scan?

I have noticed on a couple of posts that some of you are having bone density scans done. Is this a normal part of the checking process. What will the bone density scan show? How frequently do you have them done. I had always thought of bone density scans being done to show osteoporosis. Just wondering. I don't want to miss anything for my sister.
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 06-21-2007, 08:45 AM   #2
Carolyns
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Hi,

You are correct that Bone Scans are for bone density. I had regular bone scans that did not pick up bone mets. So the purpose of bone scans is to look for osteoporosis. If you want a scan to check for bone mets then you would need to get a bone scan ordered.

Once, mets were discovered I was surprised to learn that bone density testing would not have picked them up. I had always assumed that it would.

As far as the reason for having bone density testing, I did that because I was prematurely in menopause and had used chemo that could effect bone density.

I am sure others will have more information.

Carolyns
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Old 06-21-2007, 10:36 PM   #3
Leslie's sister
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Thank you

Thank you Carolyn. You have confirmed what I thought. If anyone else has other opinions on this, let me know!
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 06-22-2007, 01:51 PM   #4
tricia keegan
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Posts: 3,463
Hi six months after having my ovaries removed and starting Arimidex I had a dexa scan which showed some bone loss on my spine so I began taking Fosamax. I think the Dr orders them yearly but not sure. I had a bone scan which is totally different a few weeks before this for backache which thankfully was not mets but the begining of osteopenia. Hope this helps!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-22-2007, 08:02 PM   #5
Bev
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Hi LS,

For me they ordered Dexa because of side effects of AI's, Arimidex etc is bone loss. These drugs are for ER+, so this may be something you can cross off your list.

I may have said that these routine scans may help detecting mets. Sorry if this is wrong.

I think Dexa looks at one paticular point, right hip bone, which leaves a lot of real estate uncovered. I would think if you had an abnormality at that particular point it would show up, but doesn't give you a complete picture. BB
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Old 06-22-2007, 09:00 PM   #6
juanita
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I am er/pr- so I don't take any meds for that, but I was put in chemopause so they did a bone density scan for a baseline for comparison.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 06-22-2007, 09:40 PM   #7
Adriana Mangus
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Bone density test

Are you saying that a bone density test would not pick up mets to bones? Why do onc ordered them, then? I'm er,pr Neg. and I get this test once a year.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-23-2007, 04:45 AM   #8
mke
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I'm no expert but I've had two different types of tests.

A bone density scan is a sort of super x-ray of the lower back and pelvic area. It doesn't take long. This one checks for osteoporosis. I've had this a couple times because of age and I'm small boned.

A bone scan is a scan of the entire body - head to toe. You get a shot of some radioactive thing and then wait a while and drink a lot of water. It takes quite a while, 40 minutes or so, for the machine to completely traverse your body. This one checks for mets to the bones. I've had this one twice as part of the tests before surgery.
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Old 06-23-2007, 08:59 AM   #9
Carolyns
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Hi Adriana Mangus,

In answer to your question of whether bone density testing would pick up bone mets...I was told NO they do not and in my case they did not. That was my personal experience. If I were you I might ask my doctor these questions to put the mind at rest. Ask what the purpose of the bone density testing is and if it would pick up bone mets. It would be good for all of us to hear the answer.

Good luck and (not to put you on the spot, but...) thank you in advance for sharing what you learn from your doctor about this point.

Love, Hope, and Peace,

Carolyn
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Old 06-23-2007, 09:58 AM   #10
Adriana Mangus
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Location: California
Posts: 668
Bone Scan-two different tests

I now remember having both body scans done, the one that measures just the bones for osteoporosis and the other one for mets, so there you go, my next one is not until novemeber, so I was having a foggy day, couldn't remember.....:-)
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-23-2007, 10:30 AM   #11
kristen
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My doctored ordered my first Dex test to get a base line. I was osteopenia. My onc, put me on Fosamax, she had told me that she didn't like what chemo did to bones?! My insurance company only pays for a DEX test to be done every 2 years. The results of my second test were normal. No more Fosamax! Has anyone else had this happen? Curious. thank you.
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Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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Old 06-24-2007, 02:59 AM   #12
Leslie's sister
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Join Date: Aug 2006
Location: So California
Posts: 223
good exchange

I'm glad that I asked this question. It is sounding more and more like bone density is strictly for osteoporosis and the bone scan is checking for mets. we need to stay on top of what each test is for. thank you for discussing this!
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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