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08-28-2006, 06:04 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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happy birthday to me...madubois63
I finished up the second stage of leukemia treatment (consolidation) last Sunday, and got to go home for 2 days. I came in to the oncology clinic for catheter care and fainted (on the bathroom floor for 15 minutes in the dark). I was extremely dehydrated so they put me back in. I ended up having an infection, terrible fever/chills and all the niceties that come along with the dehydration (6 days worth)...I am much better now. I've got a headache, but other than that I feel pretty good. My counts should be on the rise soon - the drop was intentional. Even though I am in remission from the leukemia (and the bc), remission means 95% or more of the mutated cells are gone...so the consolidation is to attack that last 5%. I started Neupogen shots yesterday to help my non-existent white count and have had 1 blood and 2 platelet transfusions so far this week. Yes, today is my birthday - I made it to 43!!! It is another rainy gloomy day here on the East Coast (my grass really needs it). My mom is having her gallbladder out at 9:30 a.m., and I am anxiously waiting for my sister to call and tell me everything is ok. That will be the best present of all. I did get a phone call from the transplant hospital in Buffalo. I have 299 6/6 potential donors (we knew that), but out of the 299 several are young females that have never been pregnant (no antibodies). This is FANTASTIC news. They look for the best scenario first and that is what they wanted for me - a strong healthy immune system. They have started calling people in for appointments to do further testing. Things are moving!!! I know I've been missing in action, but the losses the last week or so really hit me hard. Thank you again to everyone for all the prayers - they are working and keeping me (partially) sane. I don't know if I would have made it this far without all the love and support you guys give so freely to me...with all my love - Maryann
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
Last edited by madubois63; 08-28-2006 at 06:06 AM..
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08-28-2006, 06:29 AM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Happy Birthday to you! So happy that things are progressing so well for you -- other than a few setbacks. Before you know it you'll be stronger than ever. Your positive spirit really inspires me.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-28-2006, 06:29 AM
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#3
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Guest
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Well! Happy birthday to you and you WILL have many more - I have faith. To have so many potential donors is great! Prayers are with you from another stage 4...
Hippie birdie 2 ewe...happy birthday to you!!!!
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08-28-2006, 06:34 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Happy Birthday Maryann!!!!
and MANY, MANY more 
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-28-2006, 06:38 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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MaryAnn
Although you are going through rough times, things are looking better all the time...may your pot of gold be there at the end of the rainbow! HAPPY BIRTHDAY TO YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!Many Many More to come.....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-28-2006, 06:46 AM
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#6
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Senior Member
Join Date: Mar 2006
Posts: 306
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Maryann,
Sending you VERY sterile hugs and kisses for your 43rd Birthday!!!
With wishes for inumerable days ahead, to a remarkable, awesome woman...
Hoping for many good blessings,
pattyz
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08-28-2006, 08:18 AM
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#7
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Maryann,
Happy Happy Birthday!! What an inspiration you are to so many of us. I am so very proud of you!
That's awesome that the matches are plentiful and I am sure that once you have the transplant you will be in remission for a LOONNGG time!
Hugs and Prayers,
Lexi
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08-28-2006, 08:47 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Maryann;
A very happy birthday to you. You are doing an amazing job dealing with all of this and I am so happy to hear you have many potential donor options. I'm sure today will be a good news day and you deserve it in spades!!
Happy Day
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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08-28-2006, 11:29 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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happy birthday Maryann!!! Here's to many many more!!
Thank you so much for your updates, even though I don't post often I always think of you and watch for your updates. Sounds like with the exception of that lousy 6 days that you have been doing fairly well!! I am so happy for you!! What a ride you have been on!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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08-28-2006, 11:33 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Maryann,
Happy birthday! It sounds like the donors are just the birthday present you need and deserve. May your new year be healthy and happy. You are so brave. Finally sounds like some good luck is coming your way.
big hug and love
sarah
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08-28-2006, 01:24 PM
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#11
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Happy Birthday sweetheart! I wish I could come share a nice big piece of birthday cake with you. You deserve it. You don't know how much you inspire us, I know you have inspired me...sherryg683
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08-28-2006, 01:24 PM
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#12
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Happy Birthday Maryann, you deserve a wonderful one after all you've been through. Good luck to your Mom too
Tricia |
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08-28-2006, 01:26 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Happy Birthday to you, Maryann. Every birthday is a milestone and should be celebrated. Sorry to hear about your setbacks, but a good match is a real gift.
Thinking of you,
Barbara H.
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08-28-2006, 01:36 PM
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#14
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Happy Birthday and Many Blessings --- MJO
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08-28-2006, 01:37 PM
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#15
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Happy Birthday and Many Blessings - MJO
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08-28-2006, 03:21 PM
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#16
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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I can't think of anyone who has been such an inspiration to so many at 43.........Happy birthday Maryann, hang tough and keep scrapping! Send love and healing vibes your way.
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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08-28-2006, 04:21 PM
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#17
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Senior Member
Join Date: Dec 2005
Posts: 274
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Happy Birthday
Happy Birthday Maryann,
Your strong spirit has carried you through and will continue to do so.
May God Bless.
Sincerely,
Liz J.
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08-28-2006, 06:21 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Happy Birthday beautiful!!!!!!!!!!! Keep kickin ass!
Many more prayers and good thoughts coming your way! - kim
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08-28-2006, 07:02 PM
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#19
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Happy Birthday Maryann, its so good to keep hearing from you and we all love the fact things are moving along so fast. Wishing both you and your Mom the best. Sending you a big birthday hug! Aren't these birthdays precious for all of us? Sandy
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08-28-2006, 07:09 PM
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#20
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Happy birthday Maryanne. I hope you can feel the love and support being sent your way.
Hugs,
Karen
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