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10-02-2008, 05:41 AM
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#1
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Senior Member
Join Date: May 2006
Posts: 85
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Help
My wife needs help. Her is what I have so far. She is stage IV with Mets to the bones and especially the lower spine and pelvice area. She has had her ups and downs over the last 5-6 years, but for the most part has lead an active life until the last year. Slowly she is loosing the ability to use her left leg. Some of the bone tumor is somehow pressing on the sciatic nerve causing major pain and numbness in her foot. The doctors are unsure what to do. It is very atypical. The pressure is not a disc or mri visible impairment. It occurs lower behind the pelvic area somewhere(thats the part that kills me - somewhere) How can they not know where. Well she is on major pain meds which are not great and do not work well. We did radiation earlier, but I think we may have missed the spot. They seem not to want to do surgery, then what then! This process is very lengthy. My latest fear which happened is that she will fall. She did twice in two days greatfully she did not break anything. If any one has a suggestion, please please help. I am running out of options.
John - Husband
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10-02-2008, 08:03 AM
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#2
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Senior Member
Join Date: Jul 2008
Location: Murfreesboro, Tennessee
Posts: 48
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John - I have no advice but wanted to post and say I am so sorry to hear about your wife and the struggles you are having. I will hold you both in my heart and wish you strength to get through this.
__________________
Dx June 2008, Age 44
Mother Dx age 54, deceased
1.2 cm tumor right breast, grade 3, ER 4+; PR 3+
HER2 +, invasive ductal carcinoma
Quadrantectomy right on 7/30/08
Path report, all 3 nodes taken were clear!!!!!!
Lymphatic/vascular invasion and sent out BRCA testing
Port in on 9/2/08. Chemo began 9/3/08. TCH (MUGA wrong - echocardiogram says 65% cardiac MRI 59% 9/10/98 elevated liver enzymes, PET scan 9/16/08 all clear.
TC ended 12/17/08
Port blood clot and hosp. 1/2/09
radiation begins 1/8/09
BRCA testing done - results NEGATIVE!
cardiologist said go back to coreg as it helps counteract heart effects of herceptin and slowly increase dosage - now 40mg daily.
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10-02-2008, 08:12 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Can you get a 2nd opinion from someone other than the ones currently managing her care ?
Maybe even outside of the cancer realm ?
Maria
__________________
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Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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10-02-2008, 08:41 AM
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#4
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Senior Member
Join Date: Jan 2008
Location: Carmel, Indiana
Posts: 98
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Can you get an appointment with a neurologist?
__________________
DX 9-19-07 at age 40
DCIS, Inv. Duct. Car. 3 cm
Positive lymph node biopsy
Er+Pr+Her+++
Carboplatin/Taxotere/Herceptin
10-1-07 -- 1-16-08
Herceptin every 3 weeks until 9/24/08
Lump. and node dissection 2-12-08
BRCA1 and 2 negative
30 rads finished 4-23-08
oophorectomy 5-6-08
Femara started 5/25/08
Zometa for osteoporosis every 6 mo. started 9-24-08
Married 16 years!
3 kids - daughter (10), twin sons (7)
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10-02-2008, 08:54 AM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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what type of MRI did they do? Only a L/S spine or
also a pelvic MRI--did they do an MRI of the leg?
Did they do an EMG with Nerve conduction velocities(NCV)?
It is like a traffic report looking to see where the traffic of electrical signals
got caught up when not enough are flowing down the leg to the foot.
An orthopaedic surgeon or a neurosurgeon can order these studies--whether or not they plan to operate.
Is there a major cancer center or university teaching hospital near you?
All my best thoughts and prayers
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10-04-2008, 07:48 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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just sending hugs and prayers!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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10-04-2008, 07:51 PM
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#7
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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John,
Sending you and your wife prayers that you get the answers you need.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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